From: A region-based palliative care intervention trial using the mixed-method approach: Japan OPTIM study
 | Primary end-points | Secondary end-points |
---|---|---|
Location of death | Home death | Distribution of location of death (home, hospital, palliative care units, nursing home) |
Use of specialized palliative care services Patients | Number of patients who received specialized palliative care services | Backgrounds of patients referred to specialized palliative care services |
Patients | ||
Quality of palliative care | Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale | Care Evaluation Scale -physical care provided by physicians -physical care provided by nurses -psycho-existential care -help with decision-making -coordination/consistency of care |
Quality of life | Â | Good Death Inventory -physical and psychological comfort -living in a favorite place -maintaining hope and pleasure -having a good relationship with medical staff -not feeling a burden to others -having a good relationship with the family -having independence -having environmental comfort -being respected as an individual -a feeling of fulfillment at life's completion |
Pain | Â | Brief Pain Inventory |
Satisfaction | Â | Satisfaction scale |
Knowledge, beliefs, and concerns | Â | Knowledge of opioids, Beliefs about palliative care, Concerns about home care |
Feelings of support and security about cancer care in the region Bereaved family members | Â | Sense of Security Scale |
Bereaved family members | ||
Quality of palliative care | Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale | Care Evaluation Scale -same as patient, and, -help with decision making for family -family care |
Quality of life of the patient (proxy) | Â | Good Death Inventory (same as patient) |
Satisfaction | Â | Satisfaction scale |
Knowledge, beliefs, and concerns | Â | Knowledge of opioids, Beliefs about palliative care, Concerns about home care |
Feelings of support and security about cancer care in the region | Â | Sense of Security Scale |
Care burden | Â | Caregiving Consequence Inventory -Burden |
Time spent at home | Â | Time spent at home |
Physicians and nurses | Â | Palliative Care Knowledge Test -philosophy, pain, dyspnea, delirium, and gastro-intestinal symptoms |
 |  | Palliative Care Difficulty Scale -expert support, alleviating symptoms, community coordination, communication in multidisciplinary teams, and communication with patients and families |
 |  | Palliative Care Self-reported practice Scale |