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Table 1 Analysis of death certificates to establish cause of death and life-limiting condition

From: Evidence-based planning and costing palliative care services for children: novel multi-method epidemiological and economic exemplar

Death certificate analysis age 0 to 19 years 2002-7

Overall Picture

1052 deaths

569/1052 (54%) deaths from life-limiting conditions

887 causes of death recorded

 

196/887 (22%) causes of death were considered life-limiting.

420/887 children died from 176 life-limiting conditions

ICD 10 Chapter [27]

II - C or D

I- A

IV- E

VI- G

IX- I

X – XVI J or P

XVII- Q

neoplasms, diseases of the blood and blood-forming organs; certain disorders involving the immune mechanism

infectious and parasitic diseases

endocrine, nutritional and metabolic disease

diseases of the nervous system

diseases of the circulatory system),

diseases of the respiratory system; certain conditions originating in the perinatal period)

congenital malformations, deformations and chromosomal abnormalities

104/420 (25%)

50/420 (12%)

24/420 (6%)

88/420 (21%)

36/420 (9%)

30/420 (7%)

54/420 (13%)

Only seven individual life-limiting conditions (4%) caused more than 10 deaths in children

169/887 neonatal deaths from life-limiting conditions

ICD 10 Chapter [27]

XVI- P

XVII- Q

certain conditions originating in the perinatal period

congenital malformations, deformations and chromosomal abnormalities

92/169 (54%)

73/169 (43%)

97% deaths were caused by only two life-limiting conditions