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Table 1 ACT/RCPCH Categories[6]

From: Paediatric palliative care: development and pilot study of a ‘Directory’ of life-limiting conditions

Category

Key characteristic

Description

Examples

I

Potential for cure - life is threatened, not necessarily limited.

Conditions for which treatment may be feasible but can fail

Cancer

Some cardiac anomalies

II

Period of normality despite having fatal diagnosis.

Conditions where premature death is inevitable but where there may be long periods of participation in normal activities

Duchenne Muscular Dystrophy

III

Relentless deterioration from, or before, time of diagnosis.

Progressive conditions without curative treatment options, where treatment is exclusively palliative and commonly extends over many years

Metabolic or neurodegenerative conditions

IV

Unpredictable course whose progression is not easily judged from natural history.

Irreversible but non-progressive conditions causing likelihood of premature death through complications

Severe cerebral palsy

Traumatic brain injury

   

Septic brain injury