Skip to main content

Table 4 Unadjusted and adjusted odds of experiencing unmet need or concerns

From: Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?

 

Location of care

 

Unadjusted (Unadj) and Adjusted1(Adj) Odds ratio (95% confidence interval)

Outcomes:

Home

Hospital (acutechronic care)

Hospital palliative unit

Long-term care

Decedent did not receive the desired help for:

 

Unadj

Adj

Unadj

Adj

Unadj

Adj

Pain

Referent

0.9 (0.5-1.5)

0.8 (0.5-1.5)

0.8 (0.3-1.7)

0.8 (0.4-1.9)

0.9 (0.5-1.4)

1.2 (0.7-2.2)

Dyspnea2

Referent

0.4 (0.2-0.7)

0.3 (0.1-0.6)

100% had their needs met

0.3 (0.2-0.6)

0.2 (0.1-0.5)

Emotional support

Referent

1.3 (0.9-1.9)

1.1 (0.7-1.7)

0.6 (0.3-1.1)

0.6 (0.3-1.1)

0.8 (0.5-1.1)

0.7 (0.4-1.1)

Shared decision making. Informant had concerns with communication

Referent

1.9 (1.4-2.6)

2.0 (1.4-2.8)

1.1 (0.7-1.8)

1.3 (0.8-2.1)

1.0 (0.7-1.4)

1.2 (0.8-1.8)

Concerns with the decedent being treated with respect

Referent

3.7 (2.4-5.6)

3.2 (2.1-5.0)

2.0 (1.1-3.6)

2.1 (1.1-3.9)

2.2 (1.5-3.4)

2.3 (1.4-3.8)

Attend to the needs of the family

a) Unmet need in obtaining information

Referent

1.1 (0.9-1.5)

1.0 (0.8-1.4)

0.6 (0.4-0.9)

0.6 (0.4-1.0)

0.7 (0.5-0.9)

0.7 (0.5-1.0)

b) Concerns with knowing what to expect

Referent

1.2 (0.8-1.6)

1.1 (0.8-1.5)

1.0 (0.6-1.5)

1.1 (0.7-1.7)

0.6 (0.5-0.9)

0.7 (0.5-0.9)

Concerns about support for the emotional and spiritual needs of the family

Referent

1.0 (0.7-1.4)

0.9 (0.6-1.2)

1.0 (0.7-1.5)

1.0 (0.6-1.6)

1.0 (0.8-1.4)

0.7 (0.5-1.0)

Coordination of care concerns

Referent

1.4 (0.9-2.0)

1.4 (0.9-2.0)

0.5 (0.2-1.0)

0.5 (0.2-1.0)

0.8 (0.5-1.1)

1.0 (0.6-1.6)

Not completely satisfied with overall care

Referent

1.8 (1.4-2.5)

1.6 (1.2-2.3)

1.1 (0.7-1.6)

1.1 (0.7-1.7)

1.3 (1.0-1.8)

1.2 (0.8-1.6)

  1. 1Multivariate logistic regressions adjusted for decedent sex, age, cause of death, marital status, education, income, living alone, visible minority, informant relationship status and informant awareness of the decedent’s approaching death.
  2. 2No concerns were expressed by informants of all decedents who spent the majority of their care in a hospital palliative unit during the last 30 days with respect to dyspnea care.