Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention

BMC Palliative Care

Table 1 Study schedule

Measure	Source	Baseline	6 weeks	6 months	Subsequent hospital admission	Time of death	3 months post bereavement
Carer related
KD-10	Carer	x	x	x			x
Satisfaction with end of life care in dementia scale	Carer						x
Decision satisfaction inventory	Carer	x	x				x
EQ 5D	Carer	x	x	x			x
Visual analogue scale	Carer	x	x	x			x
Economic data	Carer	x		x
Patient related
Pain scale measurements	Patient
Painful interventions scale	Patient care records	x			x	x
Other interventions	Patient care records	x			x	x
Quality of end of life care	Patient care records	x				x
Adherence to LCP	Patient care records	x				x
System related
Numbers choosing to make ACP	Patient care records	x				x
Adherence to advance care plan	Patient care records					x
Referrals to palliative care team	Patient care records	x			x	x
Unplanned admissions	Patient care records			x	x	x
Place of death	Patient care records					x
Economic data	Patient care records	x		x		x

ISSN: 1472-684X