Table 5 Top 10 ranked items for inclusion in the CAT following Phase 3 expert panel (n = 10)

D1: Understanding the current caring situation

…if the carer understands the expected progress of the condition of the person they are caring for?

1

2.88 (2.64)

D2: Current care provided by the carer

… if the carer feels able to support the psychological/emotional needs of the person they care for?

2

3.25 (3.86)

D3: Carer’s relationship with professionals

… if the carer feels that professionals involve them in decision making by seeking their knowledge and expertise about the care needed by the person they care for?

3

3.88 (1.55)

D4: Respite and emergency care needs

… if the carer would like support with a break from caring such as using a sitting service in their home for a few hours or to use respite care for a longer break? (if services available)

4

4.00 (2.12)

D3: Carer’s relationship with professionals

… if the carer feels they are receiving the support they need from professionals at the time they need it?

5

4.13 (2.17)

D2: Current care provided by the carer

… if the carer has a named person or number to call in an emergency or with any concerns about the person they care for?

6

4.50 (2.98)

D1: Understanding the current caring situation

… if the carer has responsibility for making decisions about the care of the person they care for, due to their condition or mental capacity?

7

5.20 (3.27)

D5: Financial support and assessments

… if the carer knows of and has applied for all appropriate funding, such as benefits, mobility schemes?

8

5.86 (1.86)

D7: Support for the carer

… if the carer feels they are currently receiving enough support?

9

6.00 (3.35)

D6: The carer’s health and well-being

… if the carer is able to balance their own health needs with the demands of caring?

10

6.11 (3.41)