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Table 1 Summary of expectations placed on HCBC workers from the perspectives of managers and caregivers as derived from literature review

From: Development and pilot evaluation of a home-based palliative care training and support package for young children in southern Africa

Expectations from programme managers

Expectations from caregivers

• Provide targeted education around HIV prevention

• Maintain records of visits

• Management of pain

• Development and delivery of care plans

• Monitor growth and immunization status through activities such as the “Road to Health Card'

• Have working knowledge of medicines for children

• Provide physical care – bathing, dressing, eating, using the toilet

• Provide general nursing care – pain management, treating wounds, encourage adherence to medication

• Assist with household chores – cooking, cleaning, running errands, child care

• Provide information and support on disclosure and medication

• Transporting patients to health services

• Provide advice on family care, and financial and legal aid