Age in years; M (SD) | 9.92 (6.3) | |
---|---|---|
Age groups; n (%) | Â | |
 1–5 | 7 (26.9) | |
 6–10 | 7 (26.9) | |
 11–15 | 6 (23.0) | |
 16–20 | 4 (15.3) | |
 21–25 | 2 (7.6) | |
Sex; n (%) | Â | |
 Female | 11 (42.3) | |
 Male | 15 (57.7) | |
Born premature; n (%) | Â | |
 Yes | 4 (18.2) | |
Care level; n (%)1 | Â | |
 None | 1 (3.8) | |
 1 | 0 (0) | |
 2 | 0 (0) | |
 3 | 1 (3.8) | |
 4 | 5 (19.2) | |
 5 | 19 (73.1) | |
Can the child communicate verbally?; n (%) | Â | |
 Yes, without restrictions | 2 (9.1) | |
 Yes, with restrictions | 3 (13.6) | |
 No | 17 (77.3) | |
Diagnoses2 | Â | |
 ICD-10 code | Definition of ICD 10 code and examples of underlying disease(s) | number (%) |
 P91 | Other disturbances of cerebral status of newborn | 9 (34.6) |
 | Hypoxic ischemic encephalopathy, Periventricular leukomalacia |  |
 Q87 | Other specified congenital malformation syndromes affecting multiple systems | 5 (19.2) |
 | Microdeletion syndrome 4q13.3–21.3, mosaic trisomy 9 |  |
 Q04.9 | Congenital malformation of brain, unspecified | 4 (15.4) |
 | Severe psychomotor developmental disorder with bifrontal polymicrogyria and hypomyelination. |  |
 E70-E70 | Metabolic disorders | 3 (11.5) |
 | Metachromatic leukodystrophy |  |
 Q93.9 | Disorder of brain, unspecified | 2 (7.7) |
 | Epileptic encephalopathy |  |
 G71 | Primary disorders of muscles | 1 (3.8) |
 | X-linked recessive muscular dystrophy, Duchenne type |  |
 Q89 | Other congenital malformations, not elsewhere classified | 1 (3.8) |
 | Severe global developmental disorder caused by mutation in the ACY1 gene. |  |
 G93.1 | Anoxic brain damage, not elsewhere classified | 1 (3.8) |
 | Severe multi-cystic encephalomalacia |  |