Ethics, organization and policy

Section edited by Jan Schildmann

This section considers submissions that focus on the development, outcomes or discussion of ethical issues and policies within the practice of palliative care and medicine.

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  1. Research article

    Palliative sedation challenging the professional competency of health care providers and staff: a qualitative focus group and personal written narrative study

    Despite recent advances in palliative medicine, sedating a terminally ill patient is regarded as an indispensable treatment to manage unbearable suffering. With the prospect of widespread use of palliative sed...

    Danièle Leboul, Régis Aubry, Jean-Michel Peter, Victor Royer, Jean-François Richard and Frédéric Guirimand

    BMC Palliative Care 2017 16:25

    Published on: 11 April 2017

  2. Research article

    Measuring geographical accessibility to palliative and end of life (PEoLC) related facilities: a comparative study in an area with well-developed specialist palliative care (SPC) provision

    Geographical accessibility is important in accessing healthcare services. Measuring it has evolved alongside technological and data analysis advances. High correlations between different methods have been dete...

    Clare Pearson, Julia Verne, Claudia Wells, Giovanna M. Polato, Irene J Higginson and Wei Gao

    BMC Palliative Care 2017 16:14

    Published on: 26 January 2017

  3. Research article

    Limiting treatment and shortening of life: data from a cross-sectional survey in Germany on frequencies, determinants and patients’ involvement

    Limiting treatment forms part of practice in many fields of medicine. There is a scarcity of robust data from Germany. Therefore, in this paper, we report results of a survey among German physicians with a foc...

    Birte Malena Dahmen, Jochen Vollmann, Stephan Nadolny and Jan Schildmann

    BMC Palliative Care 2017 16:3

    Published on: 17 January 2017

  4. Research article

    Evaluation of a pilot of nurse practitioner led, GP supported rural palliative care provision

    Providing end of life care in rural areas is challenging. We evaluated in a pilot whether nurse practitioner (NP)-led care, including clinical care plans negotiated with involved health professionals including...

    Geoffrey Keith Mitchell, Hugh Edgar Senior, Michael Peter Bibo, Blessing Makoni, Sharleen Nicole Young, John Patrick Rosenberg and Patsy Yates

    BMC Palliative Care 2016 15:93

    Published on: 9 November 2016

  5. Research article

    Using linked administrative and disease-specific databases to study end-of-life care on a population level

    The use of full-population databases is under-explored to study the use, quality and costs of end-of-life care. Using the case of Belgium, we explored: (1) which full-population databases provide valid informa...

    Arno Maetens, Robrecht De Schreye, Kristof Faes, Dirk Houttekier, Luc Deliens, Birgit Gielen, Cindy De Gendt, Patrick Lusyne, Lieven Annemans and Joachim Cohen

    BMC Palliative Care 2016 15:86

    Published on: 18 October 2016

  6. Research article

    Dying among older adults in Switzerland: who dies in hospital, who dies in a nursing home?

    Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine ...

    Xhyljeta Luta, Radoslaw Panczak, Maud Maessen, Matthias Egger, David C. Goodman, Marcel Zwahlen, Andreas E. Stuck and Kerri Clough - Gorr

    BMC Palliative Care 2016 15:83

    Published on: 23 September 2016

  7. Research article

    Patients’ perception of types of errors in palliative care – results from a qualitative interview study

    Medical errors have been recognized as a relevant public health concern and research efforts to improve patient safety have increased. In palliative care, however, studies on errors are rare and mainly focus o...

    Isabel Kiesewetter, Christian Schulz, Claudia Bausewein, Rita Fountain and Andrea Schmitz

    BMC Palliative Care 2016 15:75

    Published on: 11 August 2016

  8. Research article

    The ‘problematisation’ of palliative care in hospital: an exploratory review of international palliative care policy in five countries

    Government policy is a fundamental component of initiating change to improve the provision of palliative care at a national level. The World Health Organisation’s recognition of palliative care as a basic huma...

    Jackie Robinson, Merryn Gott, Clare Gardiner and Christine Ingleton

    BMC Palliative Care 2016 15:64

    Published on: 25 July 2016

  9. Study protocol

    Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience

    Compassionate support at the end of life should not be the responsibility of health and social care professionals alone and requires a response from the wider community. Volunteers, as community members, are a...

    Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Matthew Hill, Nick Ockenden, Sheila Payne and Nancy Preston

    BMC Palliative Care 2016 15:60

    Published on: 13 July 2016

    The Erratum to this article has been published in BMC Palliative Care 2016 15:98

  10. Research article

    Sedation at the end of life - a nation-wide study in palliative care units in Austria

    Sedation is used to an increasing extent in end-of-life care. Definitions and indications in this field are based on expert opinions and case series. Little is known about this practice at palliative care unit...

    Sophie Schur, Dietmar Weixler, Christoph Gabl, Gudrun Kreye, Rudolf Likar, Eva Katharina Masel, Michael Mayrhofer, Franz Reiner, Barbara Schmidmayr, Kathrin Kirchheiner and Herbert Hans Watzke

    BMC Palliative Care 2016 15:50

    Published on: 14 May 2016

  11. Research article

    The characteristics of patients who discontinue their dying process – an observational study at a single university hospital centre

    End-of-life integrated care plans are used as structuring tools for the care of the dying. A widely adopted example is the Liverpool Care Pathway for the Dying Patient (LCP). Recently, several concerns were ra...

    Christian Schulz, Daniel Schlieper, Christiane Altreuther, Manuela Schallenburger, Katharina Fetz and Andrea Schmitz

    BMC Palliative Care 2015 14:72

    Published on: 7 December 2015

  12. Research article

    Care planning needs of palliative home care clients: Development of the interRAI palliative care assessment clinical assessment protocols (CAPs)

    The interRAI Palliative Care (interRAI PC) assessment instrument provides a standardized, comprehensive means to identify person-specific need and supports clinicians to address important factors such as aspec...

    Shannon Freeman, John P Hirdes, Paul Stolee, John Garcia, Trevor Frise Smith, Knight Steel and John N Morris

    BMC Palliative Care 2014 13:58

    Published on: 15 December 2014

  13. Research article

    Factors associated with the designation of a health care proxy and writing advance directives for patients suffering from haematological malignancies

    During the last few decades, patients’ rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives fo...

    Sophie Trarieux-Signol, Stéphane Moreau, Marie-Pierre Gourin, Amélie Penot, Geoffroy Edoux de Lafont, Pierre-Marie Preux and Dominique Bordessoule

    BMC Palliative Care 2014 13:57

    Published on: 11 December 2014

  14. Research article

    Death wishes and explicit requests for euthanasia in a palliative care hospital: an analysis of patients files

    In the current public debate in France about end-of-life and legalization of euthanasia, palliative care is considered as a suitable answer or an alternative or even a supplement to euthanasia. The debate is b...

    Frédéric Guirimand, Etienne Dubois, Lucy Laporte, Jean-François Richard and Danièle Leboul

    BMC Palliative Care 2014 13:53

    Published on: 27 November 2014

  15. Research article

    What works in ‘real life’ to facilitate home deaths and fewer hospital admissions for those at end of life?: results from a realist evaluation of new palliative care services in two English counties

    We evaluated end of life care services in two English counties including: coordination centres, telephone advice line, ‘Discharge in Reach’ nurses, a specialist community personal care team and community nurse...

    Lesley Wye, Gemma Lasseter, John Percival, Lorna Duncan, Bethany Simmonds and Sarah Purdy

    BMC Palliative Care 2014 13:37

    Published on: 28 July 2014

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