Section edited by Nancy Preston

This section considers submissions that focus on psychosocial, spiritual, existential, philosophical, and psychological well being of patients and their family/carers in a palliative care setting.

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  1. Research article

    Family members of deceased palliative care patients receiving bereavement anniversary cards: a survey on the recipient’s reactions and opinions

    Bereavement support is part of palliative care. Sending out bereavement anniversary cards is one intervention of follow-up support for the bereaved. This study evaluated the suitability of bereavement annivers...

    Swantje Goebel, Sandra Stephanie Mai, Christina Gerlach, Ulrike Windschmitt, Karl-Heinz Feldmann and Martin Weber

    BMC Palliative Care 2017 16:26

    Published on: 19 April 2017

  2. Research article

    A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care

    Caregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement...

    Kia Toft Thomsen, Mai-Britt Guldin, Mette Kjærgaard Nielsen, Chaitali Laura Ollars and Anders Bonde Jensen

    BMC Palliative Care 2017 16:23

    Published on: 8 April 2017

  3. Research article

    A prospective study on the characteristics and subjects of pediatric palliative care case management provided by a hospital based palliative care team

    Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, ut...

    Charissa T. Jagt – van Kampen, Marijke C. Kars, Derk A. Colenbrander, Diederik K. Bosman, Martha A. Grootenhuis, Huib N. Caron and Antoinette Y. N. Schouten-van Meeteren

    BMC Palliative Care 2017 16:1

    Published on: 12 January 2017

  4. Research article

    “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers

    Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This pap...

    Emily Harrop, Fiona Morgan, Anthony Byrne and Annmarie Nelson

    BMC Palliative Care 2016 15:92

    Published on: 8 November 2016

  5. Research article

    The feasibility and acceptability of short-term, individual existential behavioural therapy for informal caregivers of patients recruited in a specialist palliative care unit

    Existential behavioural therapy (EBT) is a recently developed intervention to support informal caregivers of patients in a specialist palliative care unit and was initially established as a six-session group p...

    Helena S Stöckle, Sigrid Haarmann-Doetkotte, Claudia Bausewein and Martin J Fegg

    BMC Palliative Care 2016 15:88

    Published on: 24 October 2016

  6. Research article

    Caregiving in ALS – a mixed methods approach to the study of Burden

    Caregiver burden affects the physical, psychological and emotional well-being of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort (n = 81), their subjective assessment of b...

    Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines and Orla Hardiman

    BMC Palliative Care 2016 15:81

    Published on: 5 September 2016

  7. Research article

    Resilience and hope during advanced disease: a pilot study with metastatic colorectal cancer patients

    The balance between hope-hopelessness plays an important role in the way terminally ill patients report quality of life, and personal resilience may be related to hope at the end of life. The objective of this...

    Joao Paulo Consentino Solano, Amanda Gomes da Silva, Ivan Agurtov Soares, Hazem Adel Ashmawi and Joaquim Edson Vieira

    BMC Palliative Care 2016 15:70

    Published on: 2 August 2016

  8. Research article

    An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes

    Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between families and nursing home staff are uncommon, d...

    Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones and Kirsten J. Moore

    BMC Palliative Care 2016 15:55

    Published on: 7 July 2016

  9. Research article

    Factors influencing the uptake of neonatal bereavement support services – Findings from two tertiary neonatal centres in the UK

    Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing f...

    Jayanta Banerjee, Charanjit Kaur, Sridhar Ramaiah, Rahul Roy and Narendra Aladangady

    BMC Palliative Care 2016 15:54

    Published on: 29 June 2016

  10. Research article

    Correlation between patient quality of life in palliative care and burden of their family caregivers: a prospective observational cohort study

    Family caregivers play a key role in palliative care at home, and understanding the interdependencies in the constellation of patient, family caregivers and service providers is important. As few longitudinal ...

    Katja Krug, Antje Miksch, Frank Peters-Klimm, Peter Engeser and Joachim Szecsenyi

    BMC Palliative Care 2016 15:4

    Published on: 15 January 2016

  11. Research article

    Counseling for personal care options at neonatal end of life: a quantitative and qualitative parent survey

    The death of a newborn is a traumatic life changing event in the lives of parents. We hypothesized that bereaved parents of newborn infants want to have choices in the personal care of their infant at the end ...

    Emily Shelkowitz, Sharon L. Vessella, Patricia O’Reilly, Richard Tucker and Beatrice E. Lechner

    BMC Palliative Care 2015 14:70

    Published on: 2 December 2015

  12. Research article

    Determinants of favourable opinions about euthanasia in a sample of French physicians

    The question whether euthanasia should be legalised has led to substantial public debate in France. The objective of this study in a sample of French physicians was to establish the potential determinants of a...

    Lionel Dany, Karine Baumstarck, Eric Dudoit, Florence Duffaud, Pascal Auquier and Sébastien Salas

    BMC Palliative Care 2015 14:59

    Published on: 5 November 2015

  13. Research article

    Patients’ perceptions of palliative care: adaptation of the Quality from the Patient’s Perspective instrument for use in palliative care, and description of patients’ perceptions of care received

    Instruments specific to palliative care tend to measure care quality from relative perspectives or have insufficient theoretical foundation. The instrument Quality from the Patient’s Perspective (QPP) is based...

    Tuva Sandsdalen, Ingrid Rystedt, Vigdis Abrahamsen Grøndahl, Reidun Hov, Sevald Høye and Bodil Wilde-Larsson

    BMC Palliative Care 2015 14:54

    Published on: 2 November 2015

  14. Correspondence

    Workings of the human spirit in palliative care situations: a consensus model from the Chaplaincy Research Consortium

    Chaplaincy is a relatively new discipline in medicine that provides for care of the human spirit in healthcare contexts for people of all worldviews. Studies indicate wide appreciation for its importance, yet ...

    Linda Emanuel, George Handzo, George Grant, Kevin Massey, Angelika Zollfrank, Diana Wilke, Richard Powell, Walter Smith and Kenneth Pargament

    BMC Palliative Care 2015 14:29

    Published on: 2 June 2015

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