Table 1 People interviewed in the three case studies
| Â | UGANDA Ug M = male Ug F = female FG = Focus group | KENYA Ken M = male Ken F = female FG = Focus group | MALAWI Mal M = male Mal F = female FG = Focus group | Â |
|---|---|---|---|---|
Patients | 8 patients at home | 3 patients in hospital 6 patients at home (observed 4 clinical encounters) | 7 patients at home (observed 4 clinical encounters) 9 patients in 2 focus groups HIV/AIDS, TB, breast cancer, KS | 33 |
Current home caregivers | 7 | 5 (son, son, husband & daughter, sister-in-law) | 5 (daughter, wife, mother, sister, wife) | 17 |
Bereaved caregivers | 0 | 7 seen at home (wife, wife, daughter, wife, wife, niece & son) 2 at hospital (son & daughter) | 1 (mother) daughter died of AIDS | 10 |
Volunteer (community) caregivers | 3 vol. in individual interviews | 4 vol. in individual interviews 8 vol. in a focus group | 10 volunteers in 2 focus groups (average length of stay of volunteers 4 years) | 25 |
Staff members of palliative care project | 6 individual interviews 10 staff in focus group | 1 project in-charge 2 clinical officers 4 nurses | 2 project in-charges, 4 nurses, 5 HBC Assistants, 2 support staff | 36 |
Project overseers | 0 | 7 members of hospital administration | 1 project director, College of Medicine | 8 |
Community leaders | 3 (district councillor, district medical, officer, community leader) | 17 in two focus groups | 1 head of related community organisation | 21 |
TOTALS | 37 people | 66 people | 47 people | 150 |