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Table 1 Outcome measures

From: A region-based palliative care intervention trial using the mixed-method approach: Japan OPTIM study

  Primary end-points Secondary end-points
Location of death Home death Distribution of location of death (home, hospital, palliative care units, nursing home)
Use of specialized palliative care services Patients Number of patients who received specialized palliative care services Backgrounds of patients referred to specialized palliative care services
Patients
Quality of palliative care Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale Care Evaluation Scale -physical care provided by physicians -physical care provided by nurses -psycho-existential care -help with decision-making -coordination/consistency of care
Quality of life   Good Death Inventory -physical and psychological comfort -living in a favorite place -maintaining hope and pleasure -having a good relationship with medical staff -not feeling a burden to others -having a good relationship with the family -having independence -having environmental comfort -being respected as an individual -a feeling of fulfillment at life's completion
Pain   Brief Pain Inventory
Satisfaction   Satisfaction scale
Knowledge, beliefs, and concerns   Knowledge of opioids, Beliefs about palliative care, Concerns about home care
Feelings of support and security about cancer care in the region Bereaved family members   Sense of Security Scale
Bereaved family members
Quality of palliative care Total score of 3 subscales of "physical care provided by physicians", "physical care provided by nurses", "psycho-existential care) of the Care Evaluation Scale Care Evaluation Scale -same as patient, and, -help with decision making for family -family care
Quality of life of the patient (proxy)   Good Death Inventory (same as patient)
Satisfaction   Satisfaction scale
Knowledge, beliefs, and concerns   Knowledge of opioids, Beliefs about palliative care, Concerns about home care
Feelings of support and security about cancer care in the region   Sense of Security Scale
Care burden   Caregiving Consequence Inventory -Burden
Time spent at home   Time spent at home
Physicians and nurses   Palliative Care Knowledge Test -philosophy, pain, dyspnea, delirium, and gastro-intestinal symptoms
   Palliative Care Difficulty Scale -expert support, alleviating symptoms, community coordination, communication in multidisciplinary teams, and communication with patients and families
   Palliative Care Self-reported practice Scale