Table 3 Prevalence of burden within religious & spiritual, independence, family and social and treatment sub-scales by GSF or non-GSF criteria
| Â | GSF group | Non-GSF group | Â | ||||||
|---|---|---|---|---|---|---|---|---|---|
Subscale and item | Very much | Quite a bit | A little bit | Not at all | Very much | Quite a bit | A little bit | Not at all | Missing |
| Â | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) |
Religious & Spiritual | |||||||||
Thoughts about death or dying. | 9 (5.1) | 11 (6.2) | 32 (18.1) | 125(70.6) | 15 (4.8) | 17 (5.4) | 42 (13.5) | 238 (76.3) | 25 (4.9) |
Religious or spiritual needs not being met. | 4 (2.2) | 5 (2.8) | 13 (7.3) | 157 (87.7) | 4 (1.3) | 4 (1.3) | 13 (4.2) | 287 (93.2) | 27 (5.3) |
Independence | |||||||||
Losing your independence. | 36(20.1) | 39(21.8) | 38 (21.2) | 66 (36.9) | 49 (15.4) | 29 (9.1) | 69 (21.6) | 172 (53.9) | 16 (3.1) |
Changes in your ability to carry out usual activities. | 32(17.6) | 42 (23.1) | 42(23.1) | 66 (36.3) | 40 (12.7) | 49 (15.6) | 62 (19.7) | 163 (51.9) | 18 (3.5) |
Changes in your ability to carry out usual household tasks. | 36 (20.1) | 37 (20.7) | 34 (19) | 72 (40.2) | 38 (12.1) | 50 (16) | 58 (18.5) | 167 (53.4) | 22 (4.3) |
Family & Social | |||||||||
Feeling that people do not understand what you want. | 7 (3.8) | 33 (18.1) | 38 (20.9) | 104 (57.1) | 20 (6.3) | 24 (7.6) | 47 (14.9) | 225 (71.2) | 16 (3.1) |
The effect that your illness is having on your family and other people. | 34 (18.7) | 55 (30.2) | 42 (23.1) | 51 (28) | 49 (15.3) | 63 (19.6) | 98 (30.5) | 111 (34.6) | 11 (2.1) |
Lack of support from your family and other people. | 6(3.3) | 7 (3.9) | 18 (9.9) | 150 (82.9) | 9 (2.8) | 7 (2.2) | 15 (4.7) | 286 (90.2) | 16 (3.1) |
Needing more help than your family can give. | 11 (6.3) | 17 (9.7) | 25 (14.3) | 122 (69.7) | 14 (4.5) | 27 (8.6) | 39 (12.4) | 234 (74.5) | 25 (4.9) |
Treatment | |||||||||
Side effects from your treatments. | 11 (6.2) | 22 (12.4) | 38 (21.5) | 106 (59.9) | 17 (5.4) | 31 (9.9) | 54 (17.3) | 211 (67.4) | 24 (4.7) |
The long term effects of your treatment. | 22 (12.4) | 22 (12.4) | 37 (20.8) | 97 (54.5) | 34 (10.8) | 26 (8.2) | 72 (22.8) | 184 (58.2) | 20 (3.9) |