| |
2000/1
|
2002/3
|
2003/4
|
2004/5
|
2005/6
|
2006/7
|
2007/8
|
2008/9
|
2009/10
|
Population Estimates North Wales 0 -19 years
1
| |
162,100
|
162,100
|
162,100
|
162,100
|
161,300
|
160,000
|
159,200
|
158,000
|
156,600
|
Death certificate analysis 1month – 19 years
|
Actual deaths per year
| |
Average deaths 25 per year from a life-limiting condition
| | | |
Death certificate analysis 1month –19 years Place of death
|
Actual place of death over 5 years
| |
61% died in North Wales
| | | |
38% North Wales Hospital
|
23% Home
|
32% Hospital/Hospice in England2
|
Lowson et al. model 1 month – 19 years
|
Estimated deaths per year based on meta-analysis epidemiological evidence/deaths.
| |
Mean population 2002/3- 2007/8
| | |
161,113 161,113/10,000 (16.09) x 15 = 242 children/10 = 24 deaths per year
|
Prevalence Dictionary/ICD-10-HES Prevalence of children with LLC in annual contact with hospital as in-patient
|
Minimum demand by children with LLCs for in-patient services
|
Overall prevalence 25 per 10,000
| |
30/10,000 Age 3
| |
30/10,000 Age 5
| |
22/10,000 Age 7
| |
Overall prevalence 32 per 10,000
|
162,100/10,000 x25 = 405 children
|
156,600/10,000 x 32 = 501 children
|
Prevalence Dictionary/ICD-10-MCS Prevalence of children with LLC in general population
|
Maximum number of children who could potentially be affected by a LLC
| | |
Overall prevalence of LLC at 3,5 and 7 years 145/10,000
| |
156,600/10,000 x 145 2270.7 children
|
1.89% 189/10,000 Age 3
| |
1.5% 145/10,000 Age 5
| |
1.5% 145/10,000 Age 7
|
Parent/child choices interviews
| | | | | | | | |
Choice of end-of-life care at home
|
Professional perspectives Interviews/questionnaire
| | | | | | | | |
Community nursing services too stretched to provide choice
|