Table 3 Selection of questions from ADBFMI and last place of care
From: Family members’ perceptions of end-of-life care across diverse locations of care
Last place of care | |||||||
|---|---|---|---|---|---|---|---|
PCU | ICU | Acute care small | Residential care | Acute care large | Hospice | T0TAL | |
24 | 9 | 18 | 13 | 16 | 9 | 89 | |
What number would you give the overall care that [patient] received in the last two days of life? | |||||||
Not satisfied (0-5/10) | 8% (2) | 11% (1) | 17% (3) | 31% (4) | 31% (5) | 0 | 17% (15) |
Satisfied/somewhat satisfied (5-7/10) | 8% (2) | 11% (1) | 22% (4) | 31% (4) | 13% (2) | 11% (1) | 16% (14) |
Very satisfied (8-10/10) | 84% (20) | 78% (7) | 61% (11) | 38% (5) | 56% (9) | 89% (8) | 67% (60) |
In the last two days of care, how well did the doctors, nurses and other professional staff provide medical care that respected his/her wishes? | |||||||
Not satisfied | 4% (1) | 11% (1) | 0 | 23% (3) | 25% (4) | 0 | 10% (9) |
Satisfied/somewhat satisfied | 13% (3) | 0 | 17% (3) | 23% (3) | 25% (4) | 0 | 15% (13) |
Very satisfied | 83% (20) | 89% (8) | 83% (15) | 54% (7) | 50% (8) | 100% (9) | 75% (67) |
In the last two days of care, how well did the doctors, nurses and other professional staff make sure that [patient] died with dignity – that is died on her/his own terms? | |||||||
Not satisfied | 8% (2) | 0 | 22% (4) | 23% (3) | 25% (4) | 0 | 15% (13) |
Satisfied/somewhat satisfied | 8% (2) | 11% (1) | 0 | 8% (1) | 25% (4) | 0 | 9% (8) |
Very satisfied | 84% (20) | 89% (8) | 78% (14) | 69% (9) | 50% (8) | 100% (9) | 76% (68) |
In the last two days of care, how well did the doctors, nurses and other professional staff make sure [patient’s] symptoms were controlled to a degree acceptable to her/him? | |||||||
Not satisfied | 13% (3) | 11% (1) | 6% (1) | 23% (3) | 18% (3) | 0 | 12% (11) |
Satisfied/somewhat satisfied | 25% (6) | 0 | 11% (2) | 31% (4) | 13% (2) | 22 % (2) | 18% (16) |
Very satisfied | 63% (15) | 89% (8) | 83% (15) | 46% (6) | 69% (11) | 78% (7) | 70% (62) |
Would you have wanted (some/more) information about what to expect while (he/she) was dying? | |||||||
No | 63% (15) | 67% (6) | 44% (8) | 54% (7) | 50% (8) | 56% (5) | 55% (49) |
Yes | 38% (9) | 33% (3) | 56% (10) | 46% (6) | 50% (8) | 44% (4) | 45% (40) |
In (patient’s) last two days of care, how often were you or other family members kept informed about (patient’s condition) – always , usually, sometimes, never? | |||||||
Always | 38% (9) | 78% (7) | 39% (7) | 39% (5) | 38% (6) | 56% (5) | 44% (39) |
Usually, sometimes, or never | 63% (15) | 22% (2) | 61% (11) | 62% (8) | 63% (10) | 44% (4) | 56% (50) |
In the last two days of care, how well did the doctors, nurses and other professional staff provide emotional support for you and [patient’s] family and friends? | |||||||
Not satisfied | 17% (4) | 22% (2) | 33% (6) | 39% (5) | 38% (6) | 0 | 26% (23) |
Satisfied/somewhat satisfied | 29% (7) | 22% (2) | 11% (2) | 23% (3) | 19% (3) | 22% (2) | 21% (19) |
Very satisfied | 54% (13) | 56% (5) | 56% (10) | 39% (5) | 44% (7) | 78% (7) | 53% (47) |