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Table 3 Selection of questions from ADBFMI and last place of care

From: Family members’ perceptions of end-of-life care across diverse locations of care

Last place of care
  PCU ICU Acute care small Residential care Acute care large Hospice T0TAL
  24 9 18 13 16 9 89
What number would you give the overall care that [patient] received in the last two days of life?
Not satisfied (0-5/10) 8% (2) 11% (1) 17% (3) 31% (4) 31% (5) 0 17% (15)
Satisfied/somewhat satisfied (5-7/10) 8% (2) 11% (1) 22% (4) 31% (4) 13% (2) 11% (1) 16% (14)
Very satisfied (8-10/10) 84% (20) 78% (7) 61% (11) 38% (5) 56% (9) 89% (8) 67% (60)
In the last two days of care, how well did the doctors, nurses and other professional staff provide medical care that respected his/her wishes?
Not satisfied 4% (1) 11% (1) 0 23% (3) 25% (4) 0 10% (9)
Satisfied/somewhat satisfied 13% (3) 0 17% (3) 23% (3) 25% (4) 0 15% (13)
Very satisfied 83% (20) 89% (8) 83% (15) 54% (7) 50% (8) 100% (9) 75% (67)
In the last two days of care, how well did the doctors, nurses and other professional staff make sure that [patient] died with dignity – that is died on her/his own terms?
Not satisfied 8% (2) 0 22% (4) 23% (3) 25% (4) 0 15% (13)
Satisfied/somewhat satisfied 8% (2) 11% (1) 0 8% (1) 25% (4) 0 9% (8)
Very satisfied 84% (20) 89% (8) 78% (14) 69% (9) 50% (8) 100% (9) 76% (68)
In the last two days of care, how well did the doctors, nurses and other professional staff make sure [patient’s] symptoms were controlled to a degree acceptable to her/him?
Not satisfied 13% (3) 11% (1) 6% (1) 23% (3) 18% (3) 0 12% (11)
Satisfied/somewhat satisfied 25% (6) 0 11% (2) 31% (4) 13% (2) 22 % (2) 18% (16)
Very satisfied 63% (15) 89% (8) 83% (15) 46% (6) 69% (11) 78% (7) 70% (62)
Would you have wanted (some/more) information about what to expect while (he/she) was dying?
No 63% (15) 67% (6) 44% (8) 54% (7) 50% (8) 56% (5) 55% (49)
Yes 38% (9) 33% (3) 56% (10) 46% (6) 50% (8) 44% (4) 45% (40)
In (patient’s) last two days of care, how often were you or other family members kept informed about (patient’s condition) – always , usually, sometimes, never? 
Always 38% (9) 78% (7) 39% (7) 39% (5) 38% (6) 56% (5) 44% (39)
Usually, sometimes, or never 63% (15) 22% (2) 61% (11) 62% (8) 63% (10) 44% (4) 56% (50)
In the last two days of care, how well did the doctors, nurses and other professional staff provide emotional support for you and [patient’s] family and friends?
Not satisfied 17% (4) 22% (2) 33% (6) 39% (5) 38% (6) 0 26% (23)
Satisfied/somewhat satisfied 29% (7) 22% (2) 11% (2) 23% (3) 19% (3) 22% (2) 21% (19)
Very satisfied 54% (13) 56% (5) 56% (10) 39% (5) 44% (7) 78% (7) 53% (47)