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Table 1 Example of an EOLD- SWC item with improvement suggestions

From: Feedback on end-of-life care in dementia: the study protocol of the FOLlow-up project

End-of-life in dementia – satisfaction with care (EOLD-SWC) scale, item 7

I feel that my relative/care recipient got all necessary nursing assistance

Improvement suggestions (version 2.0):

Involved disciplines:

a) Make clear to the family caregivers what the possible options are for nursing assistance for their relative with dementia. To support information provision, a booklet with information regarding nursing assistance in the last stage of life of residents with dementia may be handed out.

Physicians and nurses/nurse aides

b) In communication with family caregivers, you may wish to be realistic about the prognosis of their relative with dementia. Provide contact details of the staff members with whom family caregivers may talk with regard to the prognosis of their relative and its risks.¹

Physicians and nurses/nurse aides

c) Evaluate frequently (at least once in six months) in multi-disciplinary team meetings whether all possible nursing assistance is provided to the residents with dementia.

Physicians and nurses/nurse aides

  1. ¹To feel home. [Guidance for family caregivers and nursing home staff to work together to provided care with dignity], 2009.