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Table 2 Participant characteristics (N = 189)

From: 'My dreams are shuttered down and it hurts lots’–a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda

Patients (N = 83)

Characteristic

Kenya (N = 42)

Uganda (N = 41)

Total (N = 83)

Female N (%)

28 (67)

20 (49)

48 (58)

Mean age (range, median)

35 (20-56, 34)

37 (18-61, 37)

36 (18-61, 37)

Receiving ART N (%)

29 (71)

28 (68)

57 (69)

Mean household size (range)

4.7 (1-10)

6.7 (1-13)

5.7 (1-13)

Location

     Rural

23

7

30

     Peri urban

9

18

27

     Urban

9

16

25

Care givers (N = 47)

Characteristic

Kenya (N = 26)

Uganda (N = 21)

Total (N = 47)

Female N (%)

14 (54)

14 (67)

28 (60)

Mean age (range, median)

40 (20-72, 37)

29 (18-52, 27)

35 (18-72, 32)

Mean household size (range)

5.7 (2-10)

6.5 (2-11)

6 (2-11)

Location

     Rural

14

8

22

     Peri urban

7

7

14

     Urban

5

6

11

Relationship to patienta

   

     Mother

4

2

6

     Father

1

0

1

     Sister

1

1

2

     Brother

3

4

7

     Daughter

2

3

5

     Son

2

0

2

     Wife

2

6

8

     Husband

6

1

7

     Aunt

3

1

4

     Friend

1

3

4

     Cousin

1

0

1

Staff members (N = 59)

Characteristic

Kenya (N = 30)

Uganda (N = 29)

Total (N = 59)

Designation

   

     Nurses

5

6

11

     Counselors

1

8

9

     Medical officers

2

5

7

     Clinical officers

4

2

6

     Nurse counselors

2

3

5

     Nutritionists

4

0

4

     Doctors

2

2

4

     Community nurses/workers

4

0

4

     Social workers

1

1

2

     Lab technologists

1

1

2

     Nursing officers

1

1

2

     Others

3

0

3

Mean time working at the facility (range, median)

5 years (2 months to 26 years, 2 years)

5 years (2 months to 24 years, 4 years)

5 years (2 months to 26 years, 3 years)

  1. a Sometimes these are categorical terms rather than blood relationship, for example 'father’ is also used to designate one’s father’s brother.