Paediatric palliative care: development and pilot study of a ‘Directory’ of life-limiting conditions

BMC Palliative Care

Table 3 Top eleven diagnoses accounting for three or more deaths among neonates

Number of deaths	Diagnosis	ICD10 code
60	Birth asphyxia, unspecified	P21.9
19	Hypoplasia and dysplasia of lung	Q33.6
16	Necrotising enterocolitis of fetus and newborn	P77
16	Congenital diaphragmatic hernia	Q79.0
10	Edwards’ syndrome, unspecified	Q91.3
8	Congenital malformation of heart, unspecified	Q24.9
7	Persistent fetal circulation	P29.3
4	Congenital renal failure	P96.0
4	Hypoplastic left heart syndrome	Q23.4
3	Severe birth asphyxia	P21.0
3	Patau’s syndrome, unspecified	Q91.7

These are causes of death describable by one of more of the ACT/RCPCH categories and therefore considered ‘life-limiting’ conditions. In total, there were 169 deaths from 24 diagnoses.

ISSN: 1472-684X