Table 1 Demographic characteristics of the study group
Characteristic | N |
|---|---|
Gender | |
Male | 5 |
Female | 13 |
Age | |
30-39 | 2 |
40-49 | 2 |
50-59 | 3 |
60-69 | 7 |
70-79 | 3 |
80-89 | 1 |
Relationship to person with MND | |
Spouse/partner | 18 |
Length of relationship to person with MND | |
5 to 10 years | 1 |
10 to 25 years | 3 |
More than 25 years | 14 |
Residence area | |
Urban/metropolitan | 14 |
Rural | 4 |
Highest level of education attained | |
Primary/elementary school | 1 |
Secondary/high school | 11 |
University/technical | 5 |
Postgraduate | 1 |
Number of minor children living at home | |
0 | 15 |
1 | 2 |
3 | 1 |
Current employment status | |
None | 13 |
Full-time | 3 |
Part-time | 2 |
Caring hours per day | |
Less than 4 hours | 5 |
4 to 8 hours | 2 |
8 to 12 hours | 1 |
More than 12 hours | 10 |
Time since MND diagnosis of family member | |
Less than one year | 4 |
One to two years | 9 |
Two to three years | 2 |
Three to four years | 0 |
More than four years | 3 |
Are you currently being treated for a major medical condition? | |
No | 6 |
Yes | 12 |
Have you been prescribed medication to help you cope? | |
Anti-depressant | 1 |
Anti-anxiety | 1 |
No | 16 |
Do you consider yourself to be a spiritual person? | |
Yes | 3 |
Somewhat | 10 |
No | 5 |
Cognitive screening scores of person with MND | |
No impairment | 11 |
Suspected mild to moderate impairment | 7 |
Formal support received to help cope with family member’s MND a | |
None | 7 |
Support group | 3 |
Home care | 4 |
Respite | 1 |
Counselling | 1 |
Psychologist/Psychiatrist | 2 |
Other: | |
MND Association | 3 |
Church | 1 |
Massage | 1 |
Medication | 1 |