Table 4 Assessment of family carer burden and level of agreement (Dyads of family carer and GP perspectives, n = 65*)
Family carer perspective | ||||||
|---|---|---|---|---|---|---|
Second and third months before death | Not/hardly at all | Somewhat | Fairly heavy | Severe | Total | |
GP | Not/hardly at all | 3 (4.8%) | 7 (11,3%) | 1 (1.6%) | 0 | 11 (17.7%) |
perspective | Somewhat | 6 (9.7%) | 9 (14.5%) | 7 (11.3%) | 0 | 22 (35.5%) |
Fairly heavy | 2 (3.2%) | 11 (17.7%) | 7 (11.3%) | 5 (8.1%) | 25 (40.3%) | |
Severe | 0 | 2 (3.2%) | 1 (1.6%) | 1 (1.6%) | 4 (6.5%) | |
11 (17.7%) | 29 (46.8%) | 16 (25.8%) | 6 (9.7%) | 62 (100%) | ||
Second to fourth week before death | Kappa with linear weighting 0.19 (CI 95% 0.02-0.35) | |||||
GP | Not/hardly at all | 0 | 0 | 1 (1.6%) | 0 | 1 (1.6) |
perspective | Somewhat | 1 (1.6%) | 6 (9.5%) | 5 (7.9%) | 2 (3.2%) | 14 (22.2%) |
Fairly heavy | 4 (6.3%) | 14 (22.2%) | 9 (14.3%) | 7 (11.1%) | 34 (54%) | |
Severe | 0 | 3 (4.8%) | 4 (6.3%) | 7 (11.1%) | 14 (22.5%) | |
5 (7.9%) | 23 (36.5%) | 19 (30.2%) | 16 (25.4%) | 63 (100%) | ||
Kappa with linear weighting 0.13 (CI 95% 0–0.29) | ||||||
Final week | ||||||
GP | Not/hardly at all | 0 | 0 | 2 (3.1%) | 0 | 2 (3.1%) |
perspective | Somewhat | 3 (4.7%) | 1 (1.6%) | 3 (4.7%) | 1 (1.6%) | 8 (12.5%) |
Fairly heavy | 1 (1.6%) | 9 (14.1%) | 7 (10.9%) | 9 (14.1%) | 26 (40.6%) | |
Severe | 1 (1.6%) | 7 (10.9%) | 9 (14.1%) | 11 (17.2%) | 28 (43.8%) | |
5 (7.8%) | 17 (26.6%) | 21 (32.8%) | 21 (32.8%) | 64 (100%) | ||
A linear Kappa cannot be calculated because observed concordance is smaller than mean-chance concordance | ||||||