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Table 4 Assessment of family carer burden and level of agreement (Dyads of family carer and GP perspectives, n = 65*)

From: Burden for family carers at the end of life; a mixed-method study of the perspectives of family carers and GPs

  Family carer perspective   
Second and third months before death Not/hardly at all Somewhat Fairly heavy Severe Total
GP Not/hardly at all 3 (4.8%) 7 (11,3%) 1 (1.6%) 0 11 (17.7%)
perspective Somewhat 6 (9.7%) 9 (14.5%) 7 (11.3%) 0 22 (35.5%)
  Fairly heavy 2 (3.2%) 11 (17.7%) 7 (11.3%) 5 (8.1%) 25 (40.3%)
  Severe 0 2 (3.2%) 1 (1.6%) 1 (1.6%) 4 (6.5%)
   11 (17.7%) 29 (46.8%) 16 (25.8%) 6 (9.7%) 62 (100%)
Second to fourth week before death Kappa with linear weighting 0.19 (CI 95% 0.02-0.35)
GP Not/hardly at all 0 0 1 (1.6%) 0 1 (1.6)
perspective Somewhat 1 (1.6%) 6 (9.5%) 5 (7.9%) 2 (3.2%) 14 (22.2%)
  Fairly heavy 4 (6.3%) 14 (22.2%) 9 (14.3%) 7 (11.1%) 34 (54%)
  Severe 0 3 (4.8%) 4 (6.3%) 7 (11.1%) 14 (22.5%)
   5 (7.9%) 23 (36.5%) 19 (30.2%) 16 (25.4%) 63 (100%)
   Kappa with linear weighting 0.13 (CI 95% 0–0.29)  
Final week       
GP Not/hardly at all 0 0 2 (3.1%) 0 2 (3.1%)
perspective Somewhat 3 (4.7%) 1 (1.6%) 3 (4.7%) 1 (1.6%) 8 (12.5%)
  Fairly heavy 1 (1.6%) 9 (14.1%) 7 (10.9%) 9 (14.1%) 26 (40.6%)
  Severe 1 (1.6%) 7 (10.9%) 9 (14.1%) 11 (17.2%) 28 (43.8%)
   5 (7.8%) 17 (26.6%) 21 (32.8%) 21 (32.8%) 64 (100%)
   A linear Kappa cannot be calculated because observed concordance is smaller than mean-chance concordance
  1. *Between 1–3 missing observations per period.