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Table 2 Decedent and informant characteristics by location of care (n = 1316)

From: Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?

Characteristic

 

Frequency (percent)

 

All

Location of care

  

Home

Hospital (acute/chronic care units)

Hospital palliative unit

Long-term care

Decedents (n)

1316 (100)

514 (39.1)

297 (22.6)

120 (9.1)

385 (29.3)

Sex §

     

Female

675 (51.3)

226 (44.0)

135 (45.5)

60 (50.0)

254 (66.0)

Age group (years)§

     

19-64

189 (14.4)

121 (23.5)

40 (13.5)

22 (18.3)

6 (1.6)

65-84

591 (44.9)

256 (49.8)

138 (46.5)

64 (53.3)

133 (34.6)

85+

536 (40.7)

137 (26.7)

119 (40.1)

34 (28.3)

246 (63.9)

Mean age (std)§

79.1 (12.8)

74.8 (13.1)

78.3 (12.8)

75.5 (12.6)

86.4 (8.6)

Median (range)

81 (19–107)

76.5 (19–103)

81 (24–107)

78 (43–98)

87 (28–101)

Cause of death §

     

Cancer

501 (38.1)

286 (55.8)

93 (31.3)

84 (70.0)

38 (9.9)

Circulatory system disease

319 (24.2)

105 (20.5)

87 (29.3)

18 (15.0)

109 (28.3)

Respiratory system disease

129 (9.8)

36 (7.0)

35 (11.8)

7 (5.8)

51 (13.3)

Nervous system/mental and behavioural disorders

170 (12.9)

30 (5.8)

18 (6.1)

5 (4.2)

117 (30.4)

Other causes

197 (15.0)

57 (11.1)

64 (21.6)

6 (5.0)

70 (18.2)

Cancer cause of death §

     

Cancer

501 (38.1)

286 (55.8)

93 (31.4)

84 (70.0)

38 (9.9)

Non-cancer

813 (61.9)

227 (44.3)

203 (68.6)

36 (30.0)

347 (90.1)

Marital status §

     

Married

629 (47.8)

321 (62.5)

142 (47.8)

66 (55.0)

100 (26.0)

Divorced/separated

92 (7.0)

30 (5.8)

29 (9.8)

9 (7.5)

24 (6.2)

Never married

80 (6.1)

22 (4.3)

22 (7.4)

13 (10.8)

23 (6.0)

Widowed

515 (39.1)

141 (27.4)

104 (35.0)

32 (26.7)

238 (61.8)

Lived alone §

     

Yes

229 (17.4)

100 (19.5)

80 (26.9)

32 (26.7)

17 (4.4)

Perceived themselves as a visible minority *

     

Yes

94 (7.2)

30 (5.9)

32 (10.8)

11 (9.2)

21 (5.5)

No

1206 (92.0)

479 (93.9)

261 (88.2)

107 (89.2)

359 (93.3)

Don’t know

11 (0.8)

1 (0.2)

3 (1.0)

2 (1.7)

5 (1.3)

Education (highest level completed)§

     

Completed postsecondary

340 (25.8)

170 (33.1)

71 (23.9)

32 (26.7)

67 (17.4)

Some postsecondary

166 (12.6)

71 (13.8)

39 (13.1)

16 (13.3)

40 (10.4)

High school

217 (16.5)

82 (16.0)

47 (15.8)

21 (17.5)

67 (17.4)

Less than high school

562 (42.7)

179 (34.8)

135 (45.5)

49 (40.8)

199 (51.7)

Don’t know

31 (2.4)

12 (2.3)

5 (1.7)

2 (1.7)

12 (3.1)

Income (dollars)§

     

Less than 20,000

319 (24.2)

76 (14.8)

74 (24.9)

22 (18.3)

147 (38.2)

20,000 – 29,999

291 (22.1)

100 (19.5)

62 (20.9)

33 (27.5)

96 (24.9)

30,000 – 49,999

230 (17.5)

97 (18.9)

58 (19.5)

24 (20.0)

51 (13.3)

Greater than 50,000

312 (23.7)

179 (34.8)

66 (22.2)

25 (20.8)

42 (10.9)

Don’t know/refused

164 (12.5)

62 (12.1)

37 (12.5)

16 (13.3)

49 (12.7)

Aware of own approaching death §

     

Yes

649 (49.3)

320 (62.3)

131 (44.1)

66 (71.7)

112 (29.1)

No

466 (35.4)

133 (25.9)

122 (41.1)

16 (13.3)

195 (50.7)

Not sure

201 (15.3)

61 (11.9)

44 (14.8)

18 (15.0)

78 (20.3)

Informant

     

Sex

     

Female

926 (70.4)

382 (74.3)

217 (73.1)

75 (62.5)

252 (65.5)

Age group (years)

     

19-64

717 (54.5)

282 (55.0)

167 (56.2)

61 (50.8)

207 (53.8)

65-84

542 (41.2)

218 (42.5)

114 (38.4)

53 (44.2)

157 (40.8)

85+

56 (4.3)

13 (2.5)

16 (5.4)

6 (5.0)

21 (5.5)

Mean age (std)

63.9 (11.4)

63.3 (11.5)

64.1 (11.5)

63.6 (12.7)

64.8 (10.7)

Median (range)

63 (27–96)

63 (29–92)

63 (27–96)

64 (29–91)

64 (32–93)

Relationship to decedent §

     

Spouse/partner

473 (35.9)

262 (51.0)

98 (33.0)

49 (40.8)

64 (16.6)

Their child

638 (48.5)

200 (38.9)

139 (46.8)

44 (36.7)

255 (66.2)

Other

205 (15.6)

52 (10.1)

60 (20.2)

27 (22.5)

66 (17.1)

Education (highest level completed)

     

Completed postsecondary

657 (49.9)

273 (53.1)

140 (47.1)

55 (45.8)

189 (49.1)

Some postsecondary

247 (18.8)

90 (17.5)

66 (22.2)

24 (20.0)

67 (17.4)

High school

234 (17.8)

83 (16.2)

49 (16.5)

20 (16.7)

82 (21.3)

Less than high school

175 (13.3)

65 (12.7)

42 (14.1)

21 (17.5)

47 (12.2)

Don’t know/refused

3 (0.2)

3 (0.6)

0

0

0

Health status

     

Excellent

289 (22.0)

104 (20.4)

67 (22.0)

27 (22.7)

91 (23.6)

Very good

525 (40.0)

195 (38.2)

117 (39.4)

48 (40.3)

165 (42.9)

Good

344 (26.2)

146 (28.6)

73 (24.6)

30 (25.2)

95 (24.7)

Fair

114 (8.7)

47 (9.2)

30 (10.1)

7 (5.9)

30 (7.8)

Poor

40 (3.1)

19 (3.7)

10 (3.4)

7 (5.9)

4 (1.0)

Aware of decedent did not have long to live §

     

Yes

734 (55.8)

295 (57.4)

145 (48.8)

90 (75.0)

204 (53.0)

No

339 (25.8)

126 (24.5)

91 (30.6)

13 (10.8)

109 (28.3)

Not sure

243 (18.5)

93 (18.1)

61 (20.5)

17 (14.2)

72 (18.7)

  1. Differences were assessed using Pearson chi square and Fisher’s exact tests of association for categorical variables; one-way analysis of variance for continuous variables: *p < 0.05; p < 0.01; §p < 0.0001.