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Table 2 Decedent and informant characteristics by location of care (n = 1316)

From: Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?

Characteristic   Frequency (percent)
  All Location of care
   Home Hospital (acute/chronic care units) Hospital palliative unit Long-term care
Decedents (n) 1316 (100) 514 (39.1) 297 (22.6) 120 (9.1) 385 (29.3)
Sex §      
Female 675 (51.3) 226 (44.0) 135 (45.5) 60 (50.0) 254 (66.0)
Age group (years)§      
19-64 189 (14.4) 121 (23.5) 40 (13.5) 22 (18.3) 6 (1.6)
65-84 591 (44.9) 256 (49.8) 138 (46.5) 64 (53.3) 133 (34.6)
85+ 536 (40.7) 137 (26.7) 119 (40.1) 34 (28.3) 246 (63.9)
Mean age (std)§ 79.1 (12.8) 74.8 (13.1) 78.3 (12.8) 75.5 (12.6) 86.4 (8.6)
Median (range) 81 (19–107) 76.5 (19–103) 81 (24–107) 78 (43–98) 87 (28–101)
Cause of death §      
Cancer 501 (38.1) 286 (55.8) 93 (31.3) 84 (70.0) 38 (9.9)
Circulatory system disease 319 (24.2) 105 (20.5) 87 (29.3) 18 (15.0) 109 (28.3)
Respiratory system disease 129 (9.8) 36 (7.0) 35 (11.8) 7 (5.8) 51 (13.3)
Nervous system/mental and behavioural disorders 170 (12.9) 30 (5.8) 18 (6.1) 5 (4.2) 117 (30.4)
Other causes 197 (15.0) 57 (11.1) 64 (21.6) 6 (5.0) 70 (18.2)
Cancer cause of death §      
Cancer 501 (38.1) 286 (55.8) 93 (31.4) 84 (70.0) 38 (9.9)
Non-cancer 813 (61.9) 227 (44.3) 203 (68.6) 36 (30.0) 347 (90.1)
Marital status §      
Married 629 (47.8) 321 (62.5) 142 (47.8) 66 (55.0) 100 (26.0)
Divorced/separated 92 (7.0) 30 (5.8) 29 (9.8) 9 (7.5) 24 (6.2)
Never married 80 (6.1) 22 (4.3) 22 (7.4) 13 (10.8) 23 (6.0)
Widowed 515 (39.1) 141 (27.4) 104 (35.0) 32 (26.7) 238 (61.8)
Lived alone §      
Yes 229 (17.4) 100 (19.5) 80 (26.9) 32 (26.7) 17 (4.4)
Perceived themselves as a visible minority *      
Yes 94 (7.2) 30 (5.9) 32 (10.8) 11 (9.2) 21 (5.5)
No 1206 (92.0) 479 (93.9) 261 (88.2) 107 (89.2) 359 (93.3)
Don’t know 11 (0.8) 1 (0.2) 3 (1.0) 2 (1.7) 5 (1.3)
Education (highest level completed)§      
Completed postsecondary 340 (25.8) 170 (33.1) 71 (23.9) 32 (26.7) 67 (17.4)
Some postsecondary 166 (12.6) 71 (13.8) 39 (13.1) 16 (13.3) 40 (10.4)
High school 217 (16.5) 82 (16.0) 47 (15.8) 21 (17.5) 67 (17.4)
Less than high school 562 (42.7) 179 (34.8) 135 (45.5) 49 (40.8) 199 (51.7)
Don’t know 31 (2.4) 12 (2.3) 5 (1.7) 2 (1.7) 12 (3.1)
Income (dollars)§      
Less than 20,000 319 (24.2) 76 (14.8) 74 (24.9) 22 (18.3) 147 (38.2)
20,000 – 29,999 291 (22.1) 100 (19.5) 62 (20.9) 33 (27.5) 96 (24.9)
30,000 – 49,999 230 (17.5) 97 (18.9) 58 (19.5) 24 (20.0) 51 (13.3)
Greater than 50,000 312 (23.7) 179 (34.8) 66 (22.2) 25 (20.8) 42 (10.9)
Don’t know/refused 164 (12.5) 62 (12.1) 37 (12.5) 16 (13.3) 49 (12.7)
Aware of own approaching death §      
Yes 649 (49.3) 320 (62.3) 131 (44.1) 66 (71.7) 112 (29.1)
No 466 (35.4) 133 (25.9) 122 (41.1) 16 (13.3) 195 (50.7)
Not sure 201 (15.3) 61 (11.9) 44 (14.8) 18 (15.0) 78 (20.3)
Informant      
Sex      
Female 926 (70.4) 382 (74.3) 217 (73.1) 75 (62.5) 252 (65.5)
Age group (years)      
19-64 717 (54.5) 282 (55.0) 167 (56.2) 61 (50.8) 207 (53.8)
65-84 542 (41.2) 218 (42.5) 114 (38.4) 53 (44.2) 157 (40.8)
85+ 56 (4.3) 13 (2.5) 16 (5.4) 6 (5.0) 21 (5.5)
Mean age (std) 63.9 (11.4) 63.3 (11.5) 64.1 (11.5) 63.6 (12.7) 64.8 (10.7)
Median (range) 63 (27–96) 63 (29–92) 63 (27–96) 64 (29–91) 64 (32–93)
Relationship to decedent §      
Spouse/partner 473 (35.9) 262 (51.0) 98 (33.0) 49 (40.8) 64 (16.6)
Their child 638 (48.5) 200 (38.9) 139 (46.8) 44 (36.7) 255 (66.2)
Other 205 (15.6) 52 (10.1) 60 (20.2) 27 (22.5) 66 (17.1)
Education (highest level completed)      
Completed postsecondary 657 (49.9) 273 (53.1) 140 (47.1) 55 (45.8) 189 (49.1)
Some postsecondary 247 (18.8) 90 (17.5) 66 (22.2) 24 (20.0) 67 (17.4)
High school 234 (17.8) 83 (16.2) 49 (16.5) 20 (16.7) 82 (21.3)
Less than high school 175 (13.3) 65 (12.7) 42 (14.1) 21 (17.5) 47 (12.2)
Don’t know/refused 3 (0.2) 3 (0.6) 0 0 0
Health status      
Excellent 289 (22.0) 104 (20.4) 67 (22.0) 27 (22.7) 91 (23.6)
Very good 525 (40.0) 195 (38.2) 117 (39.4) 48 (40.3) 165 (42.9)
Good 344 (26.2) 146 (28.6) 73 (24.6) 30 (25.2) 95 (24.7)
Fair 114 (8.7) 47 (9.2) 30 (10.1) 7 (5.9) 30 (7.8)
Poor 40 (3.1) 19 (3.7) 10 (3.4) 7 (5.9) 4 (1.0)
Aware of decedent did not have long to live §      
Yes 734 (55.8) 295 (57.4) 145 (48.8) 90 (75.0) 204 (53.0)
No 339 (25.8) 126 (24.5) 91 (30.6) 13 (10.8) 109 (28.3)
Not sure 243 (18.5) 93 (18.1) 61 (20.5) 17 (14.2) 72 (18.7)
  1. Differences were assessed using Pearson chi square and Fisher’s exact tests of association for categorical variables; one-way analysis of variance for continuous variables: *p < 0.05; p < 0.01; §p < 0.0001.