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Table 3 Informant perceptions of unmet need/concerns by the location where the majority of care was provided during last 30 days of life

From: Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter?

Domain Perception of unmet need/concerns
  Frequency (percent)
  All Home Hospital (acute/chronic care) Hospital- palliative unit Long-term care
Physical comfort and emotions:      
Decedent did not receive desired help for:
Pain 108 (8.2) 46 (9.0) 23 (7.7) 8 (6.7) 31 (8.1)
Dyspnea§ 74 (5.6) 49 (9.5) 12 (4.0) 0 (0) 13 (3.4)
Emotional support 206 (15.7) 84 (16.3) 63 (21.2) 11 (9.2) 48 (12.5)
Promote shared decision making§:      
Concerns with communication 332 (27.2) 106 (23.8) 110 (37.8) 31 (26.1) 85 (23.3)
Concerns with the decedent being treated with respect§ 194 (14.9) 41 (8.1) 71 (24.4) 19 (15.8) 63 (16.5)
Attend to the needs of the family:      
a) Unmet need in obtaining information 525 (40.2) 220 (43.1) 137 (46.8) 37 (30.8) 131 (34.3)
b) Concerns with knowing what to expect 862 (66.0) 346 (67.7) 211 (72.0) 80 (66.7) 225 (58.9)
Concerns about support for the emotional and spiritual needs of the family 860 (65.8) 338 (66.4) 196 (66.4) 77 (64.2) 249 (65.0)
Coordination of care concerns 202 (15.9) 81 (16.2) 61 (21.7) 11 (9.2) 49 (13.2)
Overall satisfaction:      
Not completely satisfied 729 (57.0) 256 (51.1) 190 (66.4) 64 (54.2) 219 (58.6)
  1. Differences were assessed using Pearson chi square and Fishers exact tests of association for categorical variables: p < 0.01; p < 0.001; §p < 0.0001.