Table 3 Informant perceptions of unmet need/concerns by the location where the majority of care was provided during last 30 days of life
Domain | Perception of unmet need/concerns | ||||
|---|---|---|---|---|---|
Frequency (percent) | |||||
All | Home | Hospital (acute/chronic care) | Hospital- palliative unit | Long-term care | |
Physical comfort and emotions: | |||||
Decedent did not receive desired help for: | |||||
Pain | 108 (8.2) | 46 (9.0) | 23 (7.7) | 8 (6.7) | 31 (8.1) |
Dyspnea§ | 74 (5.6) | 49 (9.5) | 12 (4.0) | 0 (0) | 13 (3.4) |
Emotional support† | 206 (15.7) | 84 (16.3) | 63 (21.2) | 11 (9.2) | 48 (12.5) |
Promote shared decision making§: | |||||
Concerns with communication | 332 (27.2) | 106 (23.8) | 110 (37.8) | 31 (26.1) | 85 (23.3) |
Concerns with the decedent being treated with respect§ | 194 (14.9) | 41 (8.1) | 71 (24.4) | 19 (15.8) | 63 (16.5) |
Attend to the needs of the family: | |||||
a) Unmet need in obtaining information‡ | 525 (40.2) | 220 (43.1) | 137 (46.8) | 37 (30.8) | 131 (34.3) |
b) Concerns with knowing what to expect† | 862 (66.0) | 346 (67.7) | 211 (72.0) | 80 (66.7) | 225 (58.9) |
Concerns about support for the emotional and spiritual needs of the family | 860 (65.8) | 338 (66.4) | 196 (66.4) | 77 (64.2) | 249 (65.0) |
Coordination of care concerns† | 202 (15.9) | 81 (16.2) | 61 (21.7) | 11 (9.2) | 49 (13.2) |
Overall satisfaction‡: | |||||
Not completely satisfied | 729 (57.0) | 256 (51.1) | 190 (66.4) | 64 (54.2) | 219 (58.6) |