Table 4 Symptom unbearability in the domains of loss of function, personal aspects, environment, nature and prognosis of disease in patients with and without an explicit request for euthanasia (n = 60; for patients with administered SOS-V)*
| Â | Symptom present | Symptom unbearable | |||
|---|---|---|---|---|---|
EAS request | No EAS request | p-value** | All patients | ||
|  | %(n) | (n = 17) %(n) | (n = 43) %(n) | (n = 60) %(n) | |
Domain II: Loss of function | Â | Â | Â | Â | Â |
Impaired routine daily activities | 83 (50) | 53 (9) | 56 (24) | 0.995 | 55 (33) |
Impaired leisure activities | 82 (49) | 65 (11) | 44 (19) | 0.252 | 50 (30) |
Help needed with housekeeping | 71 (42) | 65 (11) | 33 (14) | 0.040** | 42 (25) |
Bedridden | 56 (33) | 29 (5) | 33 (14) | 0.996 | 32 (19) |
Help needed with self-care | 60 (36) | 35 (6) | 16 (7) | 0,192 | 22 (13) |
Impaired working capacity | 17 (10) | 6 (1) | 14 (6) | 0.661 | 12 (7) |
Impaired sexuality | 14 (8) | 0 (0) | 7 (3) | 0.551 | 5 (3) |
Domain III: Personal aspects | Â | Â | Â | Â | Â |
Feeling dependent on others | 80 (48) | 47 (8) | 44 (19) | 0.995 | 45 (27) |
Not able to do things you consider important | 63 (36) | 35 (6) | 42 (18) | 0.773 | 42 (24) |
Trouble accepting the present situation | 60 (36) | 41 (7) | 30 (13) | 0.545 | 33 (20) |
Loss of control over your own life | 30 (18) | 18 (3) | 30 (13) | 0.518 | 27 (16) |
Negative thoughts or worrying | 32 (19) | 6 (1) | 19 (8) | 0.423 | 15 (9) |
Feeling a nuisance to others | 38 (23) | 24 (4) | 9 (4) | 0.206 | 13 (8) |
Hopelessness | 28 (17) | 24 (4) | 9 (4) | 0.206 | 13 (8) |
Feeling not any longer being the same person | 28 (17) | 0 (0) | 14 (6) | 0.170 | 10 (6) |
Feelings of worthlessness | 22 (13) | 12 (2) | 9 (4) | 0.995 | 10 (6) |
Feeling lonely (intrapersonal) | 20 (12) | 6 (1) | 16 (7) | 0.420 | 10 (6) |
Experienced little happiness with family/friends | 22 (13) | 12 (2) | 7 (3) | 0.616 | 8 (5) |
Feeling of no longer being important to others | 18 (11) | 12 (2) | 7 (3) | 0.616 | 8 (5) |
Feeling tired of life | 17 (10) | 12 (2) | 7 (3) | 0.996 | 9 (5) |
Not satisfied with own self | 12 (7) | 6 (1) | 7 (3) | 0.995 | 7 (4) |
Feelings of guilt | 12 (7) | 6 (1) | 5 (2) | 0.490 | 5 (3) |
Lived a life with little purpose | 8 (5) | 6 (1) | 2 (1) | 0.997 | 3 (2) |
Experienced little success in life | 10 (6) | 0 (0) | 2 (1) | 0.236 | 2 (1) |
Domain IV: Environment | Â | Â | Â | Â | Â |
Relatives consider your suffering too severe | 33 (19) | 24 (4) | 12 (5) | 0..995 | 16 (9) |
Practical loneliness (isolation, no one present for you) | 15 (9) | 12 (2) | 12 (5) | 0.995 | 12 (7) |
Insufficient availability of care | 12 (7) | 12 (2) | 7 (3) | 0.616 | 8 (5) |
Unsatisfactory social contacts | 8 (5) | 6 (1) | 2 (1) | 0.491 | 3 (2) |
Insufficient support (family, relatives) | 5 (3) | 0 (0) | 2 (1) | 0.490 | 2 (1) |
Shame | 2 (1) | 0 (0) | 2 (1) | 0.490 | 2 (1) |
Domain V: Nature and prognosis of disease | Â | Â | Â | Â | Â |
Fear of future suffering | 40 (24) | 24 (4) | 14 (6) | 0.453 | 17 (10) |
Fear of future failing strength to bear suffering | 25 (15) | 6 (1) | 12 (5) | 0.662 | 10 (6) |