Table 2 Demographic information for deceased children in Phase 4 (n = 128)
Number (%) | ||
|---|---|---|
Child’s mean age (SD) | 4.1 years (6.2) | |
Girls | 66 (51.6) | |
Boys | 62 (48.4) | |
Primary diagnosis | Congenital malformations/chromosomal abnormalities | 30 (23.4) |
Neoplasms | 21 (16.4) | |
Conditions originating in perinatal period | 18 (14.1) | |
Diseases of the nervous system | 13 (10.2) | |
Endocrine and metabolic diseases | 9 (7.0) | |
Diseases of the circulatory system | 9 (7.0) | |
Diseases of the digestive system | 8 (6.3) | |
Infectious diseases | 7 (5.5) | |
External causes | 4 (3.1) | |
Other | 3 (2.3) | |
Missing | 6 (4.7) | |
Location of death | intensive care | 84 (64.8) |
hospital unit | 37 (28.9) | |
hospice | 8 (6.3) | |
Was a palliative care team involved? | yes | 54 (42.2) |
no | 51 (39.8) | |
not sure | 5 (18.0) | |