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Table 2 Demographic information for deceased children in Phase 4 (n = 128)

From: Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care

  Number (%)
Child’s mean age (SD) 4.1 years (6.2)
Girls 66 (51.6)
Boys 62 (48.4)
Primary diagnosis Congenital malformations/chromosomal abnormalities 30 (23.4)
Neoplasms 21 (16.4)
Conditions originating in perinatal period 18 (14.1)
Diseases of the nervous system 13 (10.2)
Endocrine and metabolic diseases 9 (7.0)
Diseases of the circulatory system 9 (7.0)
Diseases of the digestive system 8 (6.3)
Infectious diseases 7 (5.5)
External causes 4 (3.1)
Other 3 (2.3)
Missing 6 (4.7)
Location of death intensive care 84 (64.8)
hospital unit 37 (28.9)
hospice 8 (6.3)
Was a palliative care team involved? yes 54 (42.2)
no 51 (39.8)
  not sure 5 (18.0)