Table 1 Outcome measures and instruments used in the study
Outcome measures | Assessment instruments | Assessment times | Assessed from |
|---|---|---|---|
Primary outcome measure | |||
Quality of life | Quality of Life Questionnaire Core-15 Palliative Care (QLQ-C15-PAL) | Every four weeks for 6 months or until death | Patient |
Palliative Care Outcome Scale (POS) – Self rating | |||
Palliative Care Outcome Scale (POS) – Staff rating | GP | ||
Secondary outcome measures | |||
Pain | Visual Analogue Scale (VAS) | Every four weeks for 6 months or until death | Patient |
Burden for family caregivers | Burden Scale for Family Caregivers (BSFC) | Family caregiver | |
Health service resource use | Questionnaire | GP | |
Therapy (drug-related and other) | GP | ||
Concurrence of preferred and actual site of death | Study inclusion and end of study (6 months later) | GP | |
Documents (patient will, do-not-resuscitate order) | GP | ||
Availability of family physician | Study inclusion | GP | |
Cooperation with nursing services |