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Table 1 Characteristics of patients in the two randomised arms and excluded from the study at baseline (n = 69)

From: Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up

 

Fast Track (FI) (n = 26)

Standard Practice (SI) (n = 26)

Excluded from study (n = 17)

Gender

      

Male

9

35%

7

27%

4

24%

Female

17

65%

19

73%

13

76%

Age

      

   Mean

52.9

--

53.0

--

53.7

--

   Median

53.0

--

51.5

--

53.0

--

   SD

10.5

--

10.4

--

12.2

--

Ethnic Group (grouped)

      

White (UK, Irish, European)

23

88%

24

92%

13

93%

Any other group

3

12%

2

8%

1

7%

Not known

    

3

 

Type of MS

      

Primary Progressive MS

13

50%

10

38%

5

33%

Secondary Progressive MS

12

46%

14

54%

7

47%

Other (inc Relapsing Remitting and Devics)

1

4%

2

8%

3

20%

Not known

    

2

 

Education: continue after min school leaving age?

      

Yes

11

42%

14

54%

--

--

No

15

58%

12

46%

--

--

Education: degree or equivalent qualification?

      

Yes

9

35%

6

23%

--

--

No

17

65%

20

77%

--

--

Employment status

      

Retired

6

23%

5

19%

--

--

In employment or self-employed (PT/FT)

0

0%

1

4%

--

--

Unable to work (due to illness)

20

77%

20

77%

--

--

Did the patient ever work in health or social services?

      

Yes

4

15%

6

23%

--

--

No

22

85%

20

77%

--

--

Informal carer

      

No informal carer

6

23%

3

12%

3

23%

Partner (wife/husband)

14

54%

15

58%

7

54%

Offspring (daughter/son)

4

15%

3

12%

1

8%

Sibling (sister/brother)

1

4%

2

8%

0

0%

Parents

1

4%

3

12%

1

8%

All others

0

0%

0

0%

1

8%

Next of Kin

      

No next of kin

0

0%

1

4%

0

0%

Wife/partner

8

31%

3

12%

3

23%

Husband/partner

7

27%

12

46%

4

31%

Daughter

1

4%

3

12%

1

8%

Son

6

23%

0

0%

2

15%

Brother

1

4%

1

4%

0

0%

Sister

0

0%

1

4%

1

8%

Parents

3

12%

5

19%

1

8%

Any other carer

0

0%

0

0%

1

8%

Not known

    

4

 

Type of Carer Contact

      

Lives alone

5

19%

4

15%

3

25%

Lives with carer

20

77%

21

81%

9

75%

Other carer contact

1

4%

1

4%

0

0%

Not known

    

5

 

FUNCTION AND SYMPTOM SCALES AT BASELINE

      

UNDS TOTAL

      

   Mean, (Median)

28.2

(27.5)

29.5

(28.5)

--

--

   SD

8.9

--

9.2

--

--

--

   N completed

26

 

26

   

EDSS score

      

   Mean

7.7

(8.0)

7.9

(8.0)

--

--

   SD

1.0

--

1.0

--

--

--

   N completed

25

 

26

   

MSIS Physical score

      

   Mean

67.7

(69.0)

67.0

(70.0)

--

--

   SD

18.6

--

10.9

--

--

--

   N completed – all items

18

 

12

   

MSIS Psychological score

      

   Mean

20.8

(21.0)

24.6

(25.0)

--

--

   SD

7.5

--

10.7

--

--

--

   N completed – all items

21

 

17

   

Core POS total

      

   Mean

14.2

(14.0)

13.3

(14.0)

--

--

   SD

3.5

--

4.2

--

--

--

   N completed – all items

18

 

15

   

POS MSS total score

      

   Mean

18.7

(16.0)

18.4

(18.0)

--

--

   SD

9.4

--

10.7

--

--

--

   N completed – all items

23

 

21

   

Zarit Burden Inventory total

      

   Mean

20.5

(19.0)

22.5

(23.0)

--

--

   SD

10.7

--

6.5

--

--

--

   N completed – all items

13

 

17

   
  1. Note: N = 26 for both FI and SI groups, unless indicated for functional and symptom scales. There were no significant differences between any of the groups for any variable, at baseline.