From: Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V
Aspect | a. | b. | Aspect | a. | b. |
---|---|---|---|---|---|
Domain I | Â | Â | Domain II | Â | Â |
1 General discomfort | 2.4 | 2.4 | 38 Impaired working capacity | 1.7 | 1.6 |
2 Tired | 3.2 | 2.7 | 39 Impaired in daily activities | 3.2 | 3.2 |
3 Weakened | 3.1 | 2.9 | 40 Impaired leisure activities | 3.2 | 2.8 |
4 Not sleeping well | 1.9 | 1.8 | 41 Needing help housekeeping | 3.4 | 2.7 |
5 Pain | 2.3 | 2.2 | 42 Needing help self-care | 1.9 | 1.6 |
6 Loss of appetite | 2.3 | 2.0 | 43 Bedridden | 2.1 | 2.0 |
7 Thirst | 2.1 | 1.5 | 44 Restricted sexuality | 2.0 | 1.5 |
9 Smelling unpleasant | 1.6 | 1.5 | Domain III | Â | Â |
10 Impaired mental clarity | 1.9 | 1.9 | 45 Not satisfied with own self | 1.3 | 1.2 |
11 Concentration loss | 2.1 | 1.9 | 46 Lived life with little purpose | 1.3 | 1.1 |
12 Memory loss | 2.0 | 1.7 | 47 Little success in life | 1.2 | 1.2 |
13 Feeling tense | 1.9 | 1.7 | 48 Little happiness with family | 1.4 | 1.4 |
14 Feeling depressed | 1.5 | 1.4 | 49 Trouble accepting situation | 2.2 | 2.3 |
15 Feeling anxious | 1.4 | 1.3 | 50 Negative thoughts or worrying | 1.7 | 1.7 |
16 Shortness of breath | 2.1 | 2.7 | 51 Feelings of guilt | 1.2 | 1.2 |
17 Coughing | 1.5 | 1.3 | 52 Feelings of worthlessness | 1.4 | 1.4 |
18 Swallowing [..] food | 1.6 | 1.6 | 53 Feelings of loneliness | 1.5 | 1.3 |
19 Swallowing [..] fluid | 1.3 | 1.4 | 54 Feelings of hopelessness | 1.5 | 1.5 |
20 Nausea | 1.5 | 1.6 | 55 Feeling no longer same person | 1.5 | 1.4 |
21 Vomiting | 1.4 | 1.6 | 56 Feeling tired of life | 1.2 | 1.3 |
22 Constipation | 1.6 | 1.5 | 57 Feeling dependent of others | 2.8 | 2.6 |
23 Diarrhoea | 1.2 | 1.2 | 58 Feeling loss of control life | 1.6 | 1.7 |
24 Intestinal cramps | 1.4 | 1.4 | 59 Feeling being a nuisance | 1.7 | 1.7 |
25 Incontinence of urine | 1.3 | 1.3 | 60 Feeling not important to others | 1.3 | 1.3 |
26 Incontinence of faeces | 1.1 | 1.1 | 61 Doing Important things not possible | 2.6 | 2.6 |
27 Hiccups | 1.3 | 1.4 | Domain IV | Â | Â |
28 Pressure ulcers | 1.1 | 1.1 | 62 Not supported sufficiently | 1.1 | 1.1 |
29 Itch | 1.4 | 1.3 | 63 Lonely/people not there for you | 1.4 | 1.4 |
30 Skin metastasis | 1.1 | 1.0 | 64 Feelings of shame | 1.1 | 1.1 |
31 Paralyzed limbs | 1.1 | 1.1 | 65 Close ones consider suffering severe | 1.6 | 1.6 |
32 Impaired coordination | 2.0 | 2.0 | 66 Unsatisfactory contact close ones | 1.2 | 1.2 |
33 Incomprehensible speech | 1.6 | 1.7 | 67 Insufficient availability of care | 1.4 | 1.4 |
34 Impaired comprehension speech | 1.1 | 1.1 | Domain V | Â | Â |
35 Dizziness | 1.5 | 1.5 | 68 Fear of future suffering | 1.9 | 2.0 |
36 Impaired sight | 1.7 | 1.6 | 69 No longer having strength to suffer | 1.8 | 1.8 |
37 Impaired hearing | 1.8 | 1.7 | Â | Â | Â |