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Table 1 Themes in questionnaires

From: Associations between successful palliative cancer pathways and community nurse involvement

CN questionnaire

Validation questions about the cause of death

(46-item questionnaire)

Information about closest relative and the CN/centre involved.

 

CN knowledge of patient before the palliative pathway

 

Type of contact

 

Patient's wish for and actual place of death

 

Care for the relative during the palliative period and after bereavement

 

Cooperation with GPs, hospital doctors, palliative specialist team

 

   When discharging the patient from the hospital

 

   When the patient is at home

 

Evaluation the primary care sector's effort

 

Evaluation of CN's own effort

 

Overall view on palliative care in primary care

 

Demographic data of the CN

 

Open question on comments to the questionnaire

GP questionnaire

Validation questions about the cause of death

(72-item questionnaire)

Information about closest relative and the community nurse/centre involved.

 

GP knowledge of patient before the palliative pathway

 

Length of the palliative period

 

Type of contact

 

Patient's wish for and actual place of death

 

Care for the relative during the palliative period and after bereavement

 

Cooperation with CNs, hospital doctors, palliative specialist team

 

   Especially when discharging the patient from the hospital

 

   When the patient is at home

 

Evaluation the primary care sector's effort

 

Evaluation of GP's own effort

 

Overall view on palliative care in primary care

 

Demographic data of the GP's practice

 

Open question on comments to the questionnaire

Questionnaire for bereaved relatives

Demographic data of deceased

(65-item questionnaire)

Length of the palliative period

 

Type of contact to professionals

 

Patient's wish for and actual place of death

 

Care for the relative during the palliative period and after bereavement

 

Cooperation among GPs, CNs, hospital doctors, palliative specialist team

 

   When discharging the patient from the hospital

 

   When the patient is at home

 

Evaluation the primary care sector's effort

 

Demographic data of the relative

 

Open question on comments to the questionnaire