Table 1 Sample of experts in paediatric palliative care and related work fields (n = 24)
TYPE OF SERVICE Interview partner | N |
|---|---|
Funeral undertaker | 1 |
Head funeral undertaker (m) | 1 |
Outpatient children's hospice service 1 | 4 |
Coordinator outpatient children's hospice service (f) | 3 |
Board member (f) of the association of outpatient children's hospice services (Deutscher Kinderhospizverein e.V.) | 1 |
Outpatient paediatric palliative care service 2 | 2 |
Head paediatric palliative care team (physician, f) | 1 |
Head paediatric palliative care network (social worker, f) | 1 |
Self-help organisation | 3 |
Chairperson (m) of the association for bereaved parents (Verwaiste Eltern e.V.) | 1 |
Chairperson (f) of an initiative for psychosocial support for migrant families of a child with a life-limiting disease | 1 |
Head (m) coordination "help for self-help" of a self-help organisation for people suffering from cystic fibrosis | 1 |
Mobile paediatric nursing team | 2 |
Head mobile paediatric nursing team (f) | 2 |
Paediatrician in his own practice | 5 |
Paediatrician (m) in his own practice | 3 |
Paediatrician (f) in her own practice | 1 |
Chairperson (m) of the regional professional association of paediatricians | 1 |
Inpatient clinical care | 3 |
Head of paediatric inpatient oncological department (m) | 2 |
Senior physician inpatient intensive care unit (f) | 1 |
Outpatient clinical care | 1 |
Head social-paediatric centre3 | 1 |
Psychosocial/spiritual care | 3 |
Hospital chaplain (f) | 1 |
Psychosocial service of inpatient oncological department (social worker, f) | 1 |
Psychosocial service of inpatient oncological department (psychologist, f) | 1 |
TOTAL | 24 |