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Table 3 Legal and financial regulations

From: Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional experts

Adequate and transparent regulations Lack of clarity with respect to legal and financial regulations
Continuous need to struggle Families and professionals continuously need to struggle for services and support, associated with a high additional burden and a lack of emotional and existential stability for the families
Ethical considerations Reflection about the gap between the wish to give the best possible care to a dying child and the financial restrictions to certain care options
Funding of specific services Shortcomings in the funding of particular services, e.g. nursing home care, medication & medical supplies, reimbursement of paediatricians, coordination & psychosocial care, supervision & education, self-help