SUBCATEGORY | DESCRIPTION | |
---|---|---|
Sensitisation/public awareness | Requirement of transparent information and knowledge about palliative care for children and adolescents | |
Specialist paediatric nursing | Lack of specialist paediatric nurses and the availability of qualified nursing services | |
Pain therapy/qualified medical care | Deficit of physicians qualified in specialist paediatric pain therapy and paediatric palliative medicine | |
Psychosocial support | High importance of psychosocial support in order to meet the complexity of care, emotional needs/isolation, cope with the families' financial emergency, offer practical/organisational support and give attention to siblings | |
Networking | Different levels of networking: case-independent networking, coordination/case-management, clarification of roles and interfaces, professional exchange/helpers conference | |
Well-organised care at home | Management of the interface between inpatient and outpatient care, anticipatory care planning, safety for the parents, challenges in contact with parents | |
Infrastructure | Local proximity of care, (more) specialist teams, permanent key contact person, continuing home care by inpatient service in charge, continuing care for young adults, respite care facilities |