Skip to main content

Table 4 Gaps in the existing care delivery

From: Barriers and needs in paediatric palliative home care in Germany: a qualitative interview study with professional experts

SUBCATEGORY

 

DESCRIPTION

Sensitisation/public awareness

 

Requirement of transparent information and knowledge about palliative care for children and adolescents

Specialist paediatric nursing

 

Lack of specialist paediatric nurses and the availability of qualified nursing services

Pain therapy/qualified medical care

 

Deficit of physicians qualified in specialist paediatric pain therapy and paediatric palliative medicine

Psychosocial support

 

High importance of psychosocial support in order to meet the complexity of care, emotional needs/isolation, cope with the families' financial emergency, offer practical/organisational support and give attention to siblings

Networking

 

Different levels of networking: case-independent networking, coordination/case-management, clarification of roles and interfaces, professional exchange/helpers conference

Well-organised care at home

 

Management of the interface between inpatient and outpatient care, anticipatory care planning, safety for the parents, challenges in contact with parents

Infrastructure

 

Local proximity of care, (more) specialist teams, permanent key contact person, continuing home care by inpatient service in charge, continuing care for young adults, respite care facilities