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Table 3 Frequency of different life-limiting conditions reported by paediatricians in general practice

From: Paediatric palliative home care by general paediatricians: a multimethod study on perceived barriers and incentives

GROUP DIAGNOSES AND CONDITIONS REPORTED IN FREE-TEXT N %
1 Malignant diseases: leukaemia, medulloblastoma; brain tumours (pinealoblastoma, astrocytoma, glioblastoma); osteosarcoma; liver carcinoma; rhabdomyosarcoma; bronchopulmonary dysplasia; congenital heart defect 71 43.8
2 Cystic fibrosis; muscular dystrophy; severe immunodeficiency; short bowel syndrome 16 9.9
3 (Congenital) metabolic disorders: mucopolysaccharidosis; ceroidlipofuscinosis; adrenoleukodystrophy; mitochondropathy; neurodegenerative disease; spinal muscular atrophy; Edwards Syndrome; Morbus Alexander; metachromatic leukodystrophy; Tay-Sachs-Disease; Smith-Lemli-Opitz Syndrome; Zellweger Syndrome; SSPE 38 23.5
4 Cerebral palsy; psychomotoric retardation; myelomeningocele; epilepsy; holoprosencephaly; apallic syndrome; de Grouchy Syndrome; condition after brain haemorrhage; encephalopathy 37 22.8
TOTAL   162 100