Table 3 Descriptives for study measures completed by patients at pre-baseline, baseline and follow-ups

EQ-5D

  Visual Analogue Scale (0=worst imaginable to 100=best imaginable health state)

29

60.6

19.1

26

69.9

20.0

Pre-post ACP Intervention Questionnaire

  1. I rate my current understanding of ACP as (0=poorest to 10=best possible understanding)

30

6.5

2.4

26

7.6

1.8

  2. The opportunity to consider my possible future health care needs and wishes with health care professionals have been as (0=unsatisfying to 10=satisfying as possible)

27

6.8

2.2

25

8.0

1.5

  3. Thinking about my possible future health care needs and wishes if I became unwell causes me (0=lowest to 10=highest distress imaginable)

30

3.4

2.2

26

4.6

2.7

  4. Discussing my possible future care health needs and wishes with others would cause me the (0=lowest to 10=highest distress imaginable)

30

3.6

2.6

26

3.8

2.5

  5. Making and informing others about decisions related to my possible future health care needs and wishes is (0=not important at all to 10=extremely important)

30

7.8

1.8

26

8.4

1.9

  6. My confidence in discussion of my possible future health care needs and wishes with health professionals is (0=lowest to 10=highest possible)

30

7.7

2.2

26

8.4

1.3

  7. My confidence in discussion of my possible future health care needs and wishes with family members/friends is (0=lowest to 10=highest possible)

30

8.0

2.2

26

8.4

1.7

  8. Considering my advanced care plan is (0=not helpful at all to 10=extremely helpful)

30

7.8

2.0

26

8.0

2.7

  9. Considering advance care planning when living with a cancer diagnosis is (0=not important at all to 10=always important)

30

8.0

1.9

26

8.6

2.3

Decision Conflict Scale

  Total score (0=no to 100=extremely high decisional conflict)

30

23.9

16.5

22

22.0

15.3

26

19.7

15.9

  Uncertainty subscore (0=extremely certain to 100=extremely uncertain about best choice)

30

28.9

23.6

23

27.2

21.6

26

22.4

21.4

  Informed subscore (0=feels extremely informed to 100=feels extremely uninformed)

30

22.2

17.4

22

24.2

23.6

26

19.9

16.8

  Values clarity subscore (0=feels extremely clear to 100=feels extremely unclear about personal values for benefits & risks/side effects)

30

29.4

19.4

22

27.7

22.9

26

22.1

16.7

  Support subscore (0=feels extremely support to 100=feels extremely unsupported in decision making)

30

20.3

16.2

22

14.4

12.4

26

15.7

15.5

  Effective decision subscore (0=good decision to 100=bad decision)

30

20.0

17.4

23

18.8

11.8

26

18.5

17.9