Table 4 Estimates of change and effect size for study measures completed patients (EQ-5D-3L, DCS and PPAIQ) and carers (PPAIQ)
EQ-5D-3L (patients only) | M chg T1 to T4 (95% CI) | ES | ||
Visual Analogue Scale | 6.1 (-.1, 12.3) | 0.36 | ||
Decision Conflict Scale (patients only) | M chg T2 to T3 (95% CI) | ES | M chg T2 to T4 (95% CI) | ES |
Total score | -1.2 (-7.1, 4.8) | 0.07 | -4.7 (-11.6, 2.2) | 0.29 |
Uncertainty subscore | -2.5 (-11.7, 6.6) | 0.11 | -7.1 (-16.3, 2.2) | 0.31 |
Informed subscore | 3.4 (-4.4, 11.3) | 0.2 | -2.5 (-11.1, 6.1) | 0.15 |
Values clarity subscore | -1.0 (-11.6, 9.6) | 0.05 | -7.4 (-16.8, 1.9) | 0.39 |
Support subscore | -5.2 (-10.4, 0.03) | 0.33 | -5.1 (-11.3, 1.0) | 0.32 |
Effective decision subscore | -1.2 (-6.2, 3.8) | 0.07 | -1.9 (-8.8, 4.9) | 0.11 |
Patients | Carers | |||
Pre-post ACP Intervention Questionnaire (patients and carers) | M chg T1 to T4 (95% CI) | ES | M chg T1 to T4 (95% CI) | ES |
1. I rate my current understanding of ACP as … | 1.2 (-0.02, 2.3) | 0.50 | 1.0 (0.1, 1.9) | 0.40 |
2. The opportunity to consider my possible future health care needs and wishes with health care professionals have been as … | 1.1 (-0.01, 2.2) | 0.58 | 1.9 (0.8, 2.9) | 0.83 |
3. Thinking about my possible future health care needs and wishes if I became unwell causes me … | 1.1 (0.2, 2.0) | 0.50 | .5 (-0.7, 1.7) | 0.19 |
4. Discussing my possible future care health needs and wishes with others would cause me the … | 0.3 (-0.4, 1.1) | 0.14 | .5 (-0.8, 1.9) | 0.21 |
5. Making and informing others about decisions related to my possible future health care needs and wishes is … | 0.6 (-0.3, 1.4) | 0.30 | .2 (-0.3, 0.6) | 0.19 |
6. My confidence in discussion of my possible future health care needs and wishes with health professionals is … | 0.4 (-0.3, 1.2) | 0.21 | 1.6 (0.2, 3.0) | 0.56 |
7. My confidence in discussion of my possible future health care needs and wishes with family members/friends is … | 0.4 (-0.1, 0.9) | 0.19 | 0.5 (-0.3, 1.4) | 0.33 |
8. Considering my advanced care plan is … | 0.2 (-0.9, 1.2) | 0.08 | -0.08 (-0.6, 0.5) | 0.06 |
9. Considering advance care planning when living with a cancer diagnosis is … | 0.5 (-0.04, 1.0) | 0.25 | 1.0 (0.1, 1.9) | 0.40 |