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Table 1 Focus group discussion points

From: ‘I want to feel at home’: establishing what aspects of environmental design are important to people with dementia nearing the end of life

Group Discussion guide
People with dementia Recently bereaved family members 1. What aspects of the design of your house/garden are important to you at the moment?
2. If you have been in hospital or a medical or nursing setting, can you describe aspects of the design of the setting that you liked and/or disliked?
3. What are the key design differences between a hospital and your home? How do they both make you feel?
4. What changes would you like to make to a hospital setting that would make you feel more comfortable if you are in hospital or other medical setting?
5. If you become frail or ill, what are the key things that you would like to have in place to help you feel more comfortable?
6. Expand on why they would make you feel better
7. Expand on aspects of design you think would make you feel worse and why?
Practitioners 1. What are the key areas of importance to you when caring for someone with dementia who is frail and/or nearing the end of life?
2. When someone with dementia is dying, what do you do to care for them?
3. What are your concerns when caring for someone with dementia who is dying?
4. From your experience of caring for someone with dementia who is dying, what aspects of the design of the physical environment help or hinder the care you give?
5. What aspects of the physical environment would you like to improve when you are caring for someone with dementia who is frail and/or nearing the end of life?
6. If someone was restless in bed, what would you do to help make them more comfortable? How could the design of the setting help or hinder you with this?