Table 2 Overview of the main interview topics
Opening question | What made the strongest impression on the interviewee during the period of end-of-life care? |
|---|---|
Topic 1 | Marking the start of palliative phase, communication about the diagnosis |
Topic 2 | Primary care process (e.g. pain, other physical symptoms, physical care, psychosocial well-being and spiritual well-being) |
Topic 3 | Decisions at the end of life |
Topic 4 | Communication with the person with ID |
Topic 5 | Autonomy of the person with ID |
Topic 6 | Transitions (e.g. changes in place of care or caregivers) |
Topic 7 | Communication and cooperation with relatives |
Topic 8 | Care for relatives (e.g. dealing with loss) |
Topic 9 | Fellow residents |
Topic 10 | The funeral |
Topic 11 | Aftercare |
Topic 12 | Care for carers (e.g. dealing with loss) |