Table 3 Cases illustrating the perspectives of care staff, physicians and relatives

Josh was a man aged 58, with moderate intellectual disability (Down syndrome). He died from dementia. Josh lived in a group home in the community.

Eleanor was a frail woman aged 74, with Parkinson’s disease and heart failure. Eleanor was in a wheelchair and had a severe intellectual disability. Eleanor lived in a group home in the community. She died in a hospital.

Joe was a man aged 40, with a severe intellectual disability and lung cancer. Joe lived in a small-scale living facility on the residential premises of an ID care service.