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Table 3 Cases illustrating the perspectives of care staff, physicians and relatives

From: ‘From activating towards caring’: shifts in care approaches at the end of life of people with intellectual disabilities; a qualitative study of the perspectives of relatives, care-staff and physicians

Josh was a man aged 58, with moderate intellectual disability (Down syndrome). He died from dementia. Josh lived in a group home in the community.
Eleanor was a frail woman aged 74, with Parkinson’s disease and heart failure. Eleanor was in a wheelchair and had a severe intellectual disability. Eleanor lived in a group home in the community. She died in a hospital.
Joe was a man aged 40, with a severe intellectual disability and lung cancer. Joe lived in a small-scale living facility on the residential premises of an ID care service.