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Table 3 Areas of research that reached consensus as a priority and had a mean < 2

From: Priorities for global research into children’s palliative care: results of an International Delphi Study

Question

Round in which reached consensus

Percent

Median

Mean

SD

Section 1. Interventions and models of care for CPC

Interventions and models of care for CPC

1

80.5 %

1

1.76

1.08

Measuring outcomes of care

1

84.1 %

2

1.76

0.93

The challenges to CPC provision

2

77.3 %

2

1.95

1.17

Section 2. Clinical Care

Assessment of the WHO two-step analgesic ladder for pain management in children (please refer to the new pain guidelines

1

79.4 %

1

1.72

0.96

Use of adjuvant medicines to relive pain

1

75.6 %

2

1.91

0.97

Use of opioids in children

1

77.5 %

1

1.79

1.11

Managing pain in children where there is no morphine (Strong opioids)

1

83.1 %

1

1.61

1.11

Pain management for non-cancer children with chronic life-threatening illness

1

80.0 %

1

1.72

0.99

Understanding the needs of children and their families

1

79.4 %

2

1.83

1

Assessment and management of different symptoms

1

75.0 %

2

1.86

1.09

Non-pharmacological management of pain and other distressing symptoms

2

78.9 %

2

1.91

0.99

Validation of pain assessment tools in different settings/ ages

2

77.8 %

2

1.92

1.04

Perinatal palliative care

2

78.9 %

2

1.91

1.1

Section 3. Psychological issues

Models of providing psychological care in CPC

1

75.0 %

2

1.92

0.77

Communicating with children and their families

1

80.2 %

2

1.83

0.98

Children's understanding of death and dying

2

78.6 %

2

1.54

1.1

The illness experience for children

2

75.7 %

2

1.96

0.8

Section 7. Policies and Procedures

Funding for and the cost of CPC

1

84.6 %

1

1.67

0.89

Section 8. Legislation and ethics

Ethical issues in CPC

1

75.6 %

1

1.8

1.03

Children's rights and palliative care

2

78.2 %

1

1.81

1.13

Section 9. Education

Training needs for CPC

1

82.7 %

1

1.68

0.96

The impact of education programmes on the provision of CPC

1

75.0 %

2

1.92

0.96

Integration of CPC into core health curriculum

1

79.5 %

1

1.78

0.96

Models of education and training for CPC

2

76.2 %

2

1.89

1.11

Section 10. Other

The global need for CPC

1

78.6 %

1

1.79

1.15

Assessment of government support for CPC

2

78.2 %

2

1.83

0.94

  1. SD = Standard Deviation