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Table 1 Interview schedule

From: Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing

Palliative care:
1. How would you define palliative care?
2. Do you think a patient with Parkinson’s disease has palliative care needs?
Perceptions of patients’ and carers’ palliative care needs
3. What do you feel are the main palliative care needs of a patient with Parkinson’s disease?
4. What do you feel are the main palliative care needs of carers and families of a patient with Parkinson’s disease?
Delivery of palliative Care
5. When do you think is the most appropriate time to deliver palliative care to a patient with PD?
6. When do you think is the most appropriate time to begin talking about palliative care with a patient and/or their carer and family?
7. Who do you think should initiate the conversation about palliative care? Why?
8. Would you feel comfortable talking about palliative care with a patient with PD?
Experiences of services:
9. What specific palliative care interventions do you think people with PD could benefit from?
10. What specific palliative care interventions do you think carers and families of people with PD could benefit from?
11. What type of palliative care interventions (if any) do you provide/Do you refer patients to?
Barriers and facilitators to delivering palliative care:
12. Can you tell me about any barriers that exist which might hinder your ability to deliver palliative care to people with PD?
13. Can you tell me about any barriers that exist which hinder your ability to deliver palliative care to families/carers of patients with PD?
14. What factors would help you to facilitate the delivery of palliative care?
15. What barriers (if any) exist to providing integrated palliative care services?
16. Have you any suggestions on how a joint care approach might be implemented?
Education and training
17. What topics would you like to see included on a training module for palliative care for patients with PD?
Additional comments
18. Is there anything else that you would like to add that you did not get a chance to discuss?