Palliative care: | |
1. | How would you define palliative care? |
2. | Do you think a patient with Parkinson’s disease has palliative care needs? |
Perceptions of patients’ and carers’ palliative care needs | |
3. | What do you feel are the main palliative care needs of a patient with Parkinson’s disease? |
4. | What do you feel are the main palliative care needs of carers and families of a patient with Parkinson’s disease? |
Delivery of palliative Care | |
5. | When do you think is the most appropriate time to deliver palliative care to a patient with PD? |
6. | When do you think is the most appropriate time to begin talking about palliative care with a patient and/or their carer and family? |
7. | Who do you think should initiate the conversation about palliative care? Why? |
8. | Would you feel comfortable talking about palliative care with a patient with PD? |
Experiences of services: | |
9. | What specific palliative care interventions do you think people with PD could benefit from? |
10. | What specific palliative care interventions do you think carers and families of people with PD could benefit from? |
11. | What type of palliative care interventions (if any) do you provide/Do you refer patients to? |
Barriers and facilitators to delivering palliative care: | |
12. | Can you tell me about any barriers that exist which might hinder your ability to deliver palliative care to people with PD? |
13. | Can you tell me about any barriers that exist which hinder your ability to deliver palliative care to families/carers of patients with PD? |
14. | What factors would help you to facilitate the delivery of palliative care? |
15. | What barriers (if any) exist to providing integrated palliative care services? |
16. | Have you any suggestions on how a joint care approach might be implemented? |
Education and training | |
17. | What topics would you like to see included on a training module for palliative care for patients with PD? |
Additional comments | |
18. | Is there anything else that you would like to add that you did not get a chance to discuss? |