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Table 1 Key Characteristics Stratified by Clients Expressions of a Wish to Die among Palliative Home Care Clients in Ontario, Canada (N = 4,840)

From: The wish to die among palliative home care clients in Ontario, Canada: A cross-sectional study

  

Total Population (n = 4,840)

Expressed Wish to die (6.7 %, n = 308)

Did Not Express Wish to Die (93.3 %, n = 4,532)

Unadjusted Odds Ratio (95 % CI) ŧ

Sociodemographic characteristics

 Age Group ****

18-64a

33.6 (1,628)

22.1 (68)

34.4 (1,560)

1.00

 

65-74

25.3 (1,222)

21.1 (65)

25.5 (1,157)

1.29 (0.91-1.83)

 

75-84

28.6 (1,383)

33.4 (103)

28.2 (1,280)

1.85 (1.35-2.53)

 

85 +

12.5 (607)

23.4 (72)

11.8 (535)

3.09 (2.19-4.36)

 Gender

Malea

49.3 (2,367)

44.9 (136)

49.5 (2,231)

1.00

 

Female

50.8 (2,439)

55.1 (167)

50.5 (2,272)

1.21 (0.95-1.52)

 Marital Status**

Not Marrieda

37.2 (1,748)

47.1 (140)

36.5 (1,608)

1.00

 

Married/Have Partner

62.8 (2,952)

52.9 (157)

63.5 (2,795)

0.65 (0.51-0.82)

Clinical characteristics

 Prognosis****

Death Imminent

1.9 (75)

10.4 (26)

1.3 (49)

15.09 (8.73-26.1)

 

Less than 6 weeks

9.3 (364)

23.1 (58)

8.4 (306)

5.39 (3.65-7.97)

 

6 weeks to 6 months

48.1 (1,879)

45.0 (113)

48.3 (1,766)

1.82 (1.31-2.54)

 

Greater than 6 monthsa

40.7 (1,590)

21.5 (54)

42 (1,536)

1.00

 Reported Diagnosis****

Cancer Onlya

61.6 (2,855)

61.0 (178)

61.6 (2,677)

1.00

 

Non-Cancer Only

10.4 (480)

18.2 (53)

9.8 (427)

1.87 (1.35-2.58)

 

Cancer & Non-Cancer

28.1 (1,301)

20.9 (61)

28.6 (1,240)

0.74 (0.55-0.99)

 Functional Impairment****

No-minimal (ADL-H = 0)a

48.6 (2,223)

25.1 (71)

50.1 (2,152)

1.00

 

Mild-moderate (ADL-H = 1-2)

23.2 (1,064)

18.7 (53)

23.5 (1,011)

1.59 (1.11-2.29)

 

Severe (ADL-H ≥ 3)

28.2 (1,291)

56.2 (159)

26.4 (1,132)

4.26 (3.19-5.68)

 Decline in Functional Ability****

Noa

20.9 (906)

7.8 (23)

21.9 (883)

1.00

 

Yes

79.1 (3,420)

92.2 (272)

78.1 (3,148)

3.32 (2.15-5.11)

 Cognitive Impairment****

No-minimal (CPS = 0) a

66.8 (3,087)

52.3 (146)

67.7 (2,941)

1.00a

 

Mild-moderate (CPS = 1-2)

26.7 (1,234)

30.1 (84)

26.5 (1,150)

1.47 (1.12-1.94)

 

Severe (CPS ≥ 3)

6.5 (301)

17.6 (49)

5.8 (252)

3.92 (2.765-5.55)

 Decline in Cognition****

Noa

72.1 (3,127)

56.0 (158)

73.2 (2,969)

1.00

 

Yes

27.9 (1,210)

44.0 (124)

26.8 (1,086)

2.15 (1.68-2.74)

 Health Stability****

Stable (CHESS = 0-1)

16.0 (709)

6.3 (18)

16.6 (691)

-

 

Unstable (CHESS = 2-3)

47.1 (2,091)

36.3 (103)

47.9 (1,988)

-

 

Highly Unstable (CHESS = 4-5)

36.9 (1,637)

57.4 (163)

35.5 (1,474)

-

 Depressive Symptoms

No-Minimal Risk (DRS = 0-2) a

91.9 (4,200)

76.2 (205)

92.9 (3,995)

1.00

 

Moderate Risk (DRS =3-5)

6.4 (291)

14.9 (40)

5.8 (251)

3.11 (2.16-4.46)

 

High Risk (DRS ≥ 6)

1.8 (80)

8.9 (24)

1.3 (56)

8.35 (5.07-13.75)

 Pain*

None (PS = 0) a

26.3 (1,185)

26.0 (73)

26.3 (1112)

1.00

 

Less than severe (PS = 1-2)

55.5 (2,502)

49.8 (140)

55.9 (2,362)

0.90 (0.67-1.21)

 

Severe-excruciating (PS = 3-4)

18.2 (822)

24.2 (68)

17.8 (754)

1.37 (0.98-1.94)

 Breakthrough Pain*

Noa

66.1 (3,083)

59.4 (174)

66.5 (2,909)

1.00

 

Yes

33.9 (1,582)

40.6 (119)

33.5 (1,463)

1.36 (1.07-1.73)

 New Pain****

Noa

88.9 (4,110)

81.1 (227)

89.4 (3,883)

1.00

 

Yes

11.1 (515)

18.9 (53)

10.6 (462)

1.96 (1.43-2.69)

 Fatigue****

Noa

19.0 (901)

8.3 (25)

19.7 (876)

1.00

 

Yes

81.1 (3,854)

91.7 (275)

80.3 (3,579)

2.69 (1.78-4.08)

 Weight loss**

Noa

52.8 (2,421)

43.9 (127)

53.4 (2,294)

1.00

 

Yes

47.2 (2,162)

56.1 (162)

46.6 (2,000)

1.46 (1.15-1.86)

 Bladder Incontinence****

Noa

82.5 (3,948)

70.3 (213)

83.3 (3,735)

1.00

 

Yes

17.5 (840)

29.7 (90)

16.7 (750)

2.10 (1.63-2.73)

 Too Much Sleep****

Noa

77.8 (3,607)

51.2 (148)

79.5 (3,459)

1.00

 

Yes

22.2 (1,031)

48.8 (141)

20.5 (890)

3.70 (2.91-4.72)

Psychosocial characteristics

 Sense of completion on financial, legal, & formal responsibilities****

Noa

20.2 (929)

11.1 (32)

20.8 (897)

1.00

 

Yes

79.8 (3,676)

88.9 (257)

79.2 (3,419)

2.11 (1.45-3.07)

 Has strengths that can be fostered****

Noa

6.4 (298)

13.5 (39)

5.9 (259)

1.00

 

Yes

93.6 (4,385)

86.5 (249)

94.1 (4,136)

0.40 (0.28-0.57)

 Consistent positive outlook ****

Noa

20.2 (939)

44.6 (124)

18.6 (815)

1.00

 

Yes

79.8 (3,712)

55.4 (154)

81.4 (3,558)

0.28 (0.22-0.37)

 Struggling with meaning of life****

Noa

89.5 (3,503)

77.5 (162)

90.2 (3,341)

1.00

 

Yes

10.5 (409)

22.5 (47)

9.8 (362)

2.68 (1.90-3.77)

 Informal Caregiver Exhibits Distress****

Noa

75.9 (3,460)

65.1 (190)

76.6 (3,270)

1.00

 

Yes

24.1 (1,100)

34.9 (102)

23.4 (998)

1.76 (1.37-2.26)

  1. Note: CI denotes confidence interval; ADL-H denotes Activities of Daily Living Hierarchy Scale; CPS denotes Cognitive Performance Scale; DRS denotes Depression Rating Scale; PS denotes Pain Scale; * p < 0.05 ** p < 0.01 ***p < 0.001 **** p < 0.0001
  2. aReference Groups ŧModeled odds that client expressed a wish to die (WTD)