Table 2 Caregiver Characteristics and Outcomes
From: Caregiving in ALS – a mixed methods approach to the study of Burden
Caregivers (N = 81) | ||||
Respondent Age | ||||
Mean | 54.9 (sd 13.4) | |||
Range | 25–76 Years | |||
Sex | ||||
Male | 24 | 29.6 % | ||
Female | 57 | 70.4 % | ||
Do you live with the Patient | ||||
Live with Patient | 67 | 82.7 % | ||
Do not live with Patient | 14 | 17.3 % | ||
Relationship to the patient | ||||
Spouse/partner | 58 | 71.6 % | ||
Son/daughter | 18 | 22.2 % | ||
Parent | 2 | 2.5 % | ||
Sibling | 2 | 2.5 % | ||
Friend | 1 | 1.2 % | ||
Highest level of education completed | ||||
Primary education | 6 | 7.4 % | ||
Secondary | 30 | 37.0 % | ||
Technical | 13 | 16.0 % | ||
Degree or higher | 26 | 32.1 % | ||
Other | 6 | 7.4 % | ||
Principal economic status | ||||
Working for payment or profit | 36 | 44.4 % | ||
Unemployed | 4 | 4.9 % | ||
Looking after family/home | 18 | 22.2 % | ||
Retired | 21 | 25.9 % | ||
Unable to work due to permanent sickness or disability | 2 | 2.5 % | ||
Hours of care provided per week | ||||
Mean | 46.9 (sd 48.5) | |||
Median | 26.5 | |||
Range | 0–168 h | |||
In general, would you say your health is: | ||||
Excellent | 16 | 19.8 % | ||
Very good | 28 | 34.6 % | ||
Good | 25 | 30.9 % | ||
Fair | 10 | 12.3 % | ||
Poor | 2 | 2.5 % | ||
Caregiver Burden | ||||
High Burden | 40 | 51.9 % | ||
Low Burden | 37 | 48.1 % | ||
Measures and Scales | Mean | St Dev | Median | Range |
HADS-T Total Distress | 15.4 | 7.1 | ||
HADS-Anxiety | 9.6 | 4.3 | ||
HADS-Depression | 5.9 | 3.8 | ||
MQoL SIS Quality of Life | 5.7 | 2.1 | ||
ZARIT Burden Total | 27.1 | 14.7 | 26.0 | 3–65 |
ZBI Role Straina | 14.8 | 7.6 | 14.5 | 2–34 |
ZBI Personal Straina | 8.7 | 6.8 | 7.0 | 0–28 |
ZBI Guilta | 2.4 | 1.8 | 2.0 | 0–8 |