Table 2 Rotated factor loadings from exploratory factor analysis in the development cohort (N = 304)

Chronbach’s Alpha

The care team helped me make a choice about my care when I had one. (Q12)

The care team kept my wishes at the center of my care. (Q14)

The care team helped me understand all of my options when I had a choice about my care. (Q11)

The care team respected me. (Q13)

The care team helped me understand what was important to me. (Q10)

I trusted my care team. (Q33)

The care team helped me determine which providers I needed to see. (Q15)

The care team spent the right amount of time with me. (Q17)

I received easy to understand information from the care team in response to my questions. (Q8)

The care team did everything they could to help with my problem or physical symptom. (Q31)

I was able to get in touch with someone on my care team when needed. (Q18)

I got appointments as soon as I needed them. (Q16)

The care team knew my personal circumstances or situation. (Q5)

The care team relied upon my ideas to manage my care. (Q4)

I had to repeat myself when telling the care team about my life. (Q3)

I had to repeat myself when telling the care team about my medical condition. (Q1)

I had to repeat myself when telling the care team about what was important to me. (Q2)

I had unanswered questions about how my illness affected my everyday life. (Q7)

I had unanswered questions about how my illness affected my health. (Q6)

I have good understanding of my goals of care. (Q28)

I know what I need to do as part of my goals of care. (Q29)

My goals of care include what is important to me. (Q27)