Table 3 Data collection in Kronoberg County and Skåne County during 2015 and 2017 before and after implementation of knowledge based palliative care as a cross-over design

Sub study 1: Older persons

Structured interview (based on WHOQOL-BREF (26 items), WHOQOL-OLD (24 items), P-CAT (13 items) and PCQ-P (17 items)

40 older persons before and three months after finished implementation (i.e. 9-month interval)

Same number and interval as in the implementation nursing homes

Sub study 2: The Swedish Register of Palliative Care (SRPC)

Anonymous data for deceased persons from the participating nursing homes and nationally from the Swedish Register of Palliative Care (SRPC)

7 selected questions from the Swedish Register of Palliative Care (SRPC)

Same as in the implementation nursing homes

Sub study 3: Next of kin

Qualitative interviews about quality of life and participation and two questionnaire, PON (32/36 items) and WHOQOL-BREF (26 items)

40 next of kin before and three months after finished implementation (i.e. 9-month interval)

Same number and interval as in the implementation nursing homes

Sub study 4: Next of kin

Two questionnaires, PON (32/36 items) and WHOQOL-BREF (26 items)

200 next of kin before and three months after finished implementation (i.e. 9-month interval)

Same number and interval as in the implementation nursing homes

Psychometric study; test-retest, explorative factor analysis

See above

See above

Sub study 5: Staff

Focus group interviews (preparedness for implementation)

20 staff divided into 3 groups before and after the implementation is finished

Not done in the control nursing homes

Sub study 6: Staff

Questionnaires at two occasions: Your experience of palliative care (46 items), P-CAT (13 items) and the PCQ-S (14 items)

350 staff before and three months after finished implementation (i.e. 6-month interval)

Same number and interval as in the implementation nursing homes

Sub study 7: Managers

Two individual interviews with managers (organic preparedness for implementation)

20 managers at different levels-, during the implementation and 6 months after finished implementation (i.e. 9-month interval)

Not done in the control nursing homes

Sub study 8: Documentation

Diaries from the seminar group leaders, the participants evaluations of the seminars, documentation from board meetings as well as from the reference group meetings

All the available documentation between 2015 and 2017

Sub study 9: Implementation context

An ethnographic study: Observations and qualitative interviews

Observations on 4 occasions at 5 nursing homes with a strategic selection of qualitative interviews during the implementation

Not done in the control nursing homes