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Table 3 List of specific studies

From: The Japan hospice and palliative evaluation study 4: a cross-sectional questionnaire survey

Title  
1. The impact of socioeconomic status on the outcomes of end-of-life care and bereavement
2. The experiences of patients and their families who had cancer of an unknown primary source
3. Care burden, turnover, and death incidences in family caregivers of cancer patients
4. Association between previous experience of end-of-life-care among family caregivers and preference of place of care and death
5. Factors that contribute to good death; perspectives form bereaved families of cancer patients
6. Relatives’ perceptions about the timing of referral and administration to hospice and palliative care units
7. Differences in perception of symptoms and the association between medical staff and caregivers and recommendations about the attitudes of medical staff
8. Non-pharmacological care preferred in the management of dyspnea for advanced cancer patients
9. Content and timing of communication between patients and their families that form the basis for end-of-life discussion; the influence on well-understood feelings and implementation of end-of-life discussion
10. Personalized symptom goal; perspectives from the bereaved family members
11. With or without chemical coping based on the judgment of the family: experiences, knowledge, and needs of the family on chemical coping
12. Bereaved family members’ preferences for timing of consultation/referral to palliative care
13. Effects of advanced care planning on its relationship and view of life and death
14. Desirable communication between cancer patients who have difficulty communicating and their families
15. Physician’s explanations about the discontinuation of aggressive anticancer therapy from the viewpoint of behavioral economics
16. Important outcomes of pharmacotherapy for dyspnea in terminal cancer patients from the perspective of the bereaved family
17. Positive effects of bereavement on the bereaved family
18. Psychological effects among families of deceased using electrocardiograph monitor within 24 h before death
19. Diagnosis of complicated grief and medical economic assessment
20. Desirable bereavement care in hospice and palliative care unit from perspective of bereaved families
21. Family experiences with terminal cancer patients with cognitive impairment
22. Effects of rehabilitation on terminal cancer patients on quality of life, and its desirable implementation
23. Families’ perceptions and needs of intravenous nutrition and hydration among advanced cancer patients
24. Coping behavior after bereavement and use of bereavement care services, and its association with grief/depression
25. Effect of family function after bereavement on depression and grief among the bereaved family
26. Bereaved family’s perceptions of immunotherapy
27. Validity of VOICES-SF Japanese version
28. Family conflicts of patients using specialized palliative care
29. Social dysfunction and labor gains/losses caused by grief after bereavement
30. Utilization of family-care leave and barriers that impede its utilization
31. Association between social distress experienced by bereaved families and social capital
32. Meaning/importance of taking a bath among Japanese terminal cancer patients
33. Spiritual pain among family caregivers of terminal cancer patients
34. Survey on cases where the place of death was not home despite transfer of place of care to the home
35. Needs in visiting nursing care and role strain in home hospice/palliative care settings
36. Chemical coping led by the family; experiences, knowledge, and needs of the family regarding to chemical coping
37. Coping behavior after the death of a loved one and use of bereaved family care services, and its association with grief/depression
38. Accuracy of recall on the patient’s symptoms, and medical practice and explanations among bereaved family
39. Does continuous deep sedation lessen communication between patients and their families?
40. Psychological outcomes of bereaved families who experience unexpected sudden death in the palliative care units
41. Bereaved families’ experiences regarding to death rattle and aspiration
42. Association between evaluation of bereaved families regarding the treatment and care for end-of-life delirium and their depression/grief/pain
43. Validity of the Good Death Scale Japanese version
44. What are the desirable death pronouncements in palliative care units?
45. Bereaved families’ opinions about pneumonia treatment
46. What symptoms and medical practices can easily cause family conflicts?
47. Influence of discussion about do-not-attempt-resuscitation with terminal cancer patients on the psychological burdens and thoughts of bereaved families
48. End of life experiences such as ‘Deathbed vision’ in palliative care units
49. Evaluation of sedation based on protocol by bereaved families
50. Quality of life of patients with malignant gastrointestinal obstruction at the end-of-life and influences on their families
51. Resilience of relatives of terminal cancer patients and its influence on their mental health
52. Association between events and care in the dying process of cancer patients and the mental health of bereaved families
53. Association between the use of ‘complementary and alternative medicines’ and depression or grief of bereaved families