Table 1 Variables for aggregated quantitative data and open-ended questions included in the annual activity reports of the paediatric liaison teams

Age range classification

0–1 Y, > 1–10 Y, 11–20 Y, >  20 Y

Disease classification

Haematology/Oncology

Neurology/Degenerative

Genetic/Metabolic

Cardiovascular

Gastroenterology

Nephrology

Congenital abnormalities

Immunological

Respiratory

Others (Neonatology, Transplantation)

Origin of referral

Classification of patients

Number of patients

Origin of referral for new patients (same hospital/other hospital)

Curative/palliative/end-of-life patients

Total patients followed-up per year

Death

Place of death (home, hospital, other)

Total number of deaths

Duration of follow-up

Frequencies of admission in hospital

Mean average duration of admission

Number of contacts with families post-death

Objectives and needs

What objectives did you have? Which objectives did you achieve?

Which objectives did you partially achieve? Why?

What are your needs? Which objective(s) did you not achieve? Why?

What are your objectives for next year?

Did your team change during this year?

Strengths and weaknesses

What are the strengths of your team?

What are the weaknesses of your team?

Needs assessment

What are the requests of the target group?

What are the requests of the PLT?

What are the requests of services/institutions/hospitals?