From: Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review
Domains | Number of studies | Subdomains/ items | Prevalence ranges |
---|---|---|---|
Physical | 22 | Fatigue | |
Pain | |||
Sleep problems | |||
Dyspnea | |||
Lack of appetite | |||
gastrointestinal symptoms | |||
“Felling unwell a lot of the time” | |||
Activities of Daily Living (ADL) | 11 | “not being able to do the things you used to do” | |
“Work around the home” | |||
Psychological | 25 | “Uncertainty about the future” | |
Emotional Support | 10.1–84.4% [6, 28, 29, 31, 33, 36, 41, 45, 46, 50, 70, 72, 73] (Anxiety [6, 33]: 15.3–41.8%; Depression [31, 33, 41, 50]:15–62.4%) | ||
“worry that the results of treatment are beyond your control” | |||
“Feeling about death and dying” | |||
“Fears about the cancer spreading” | |||
“concerns about the worries of those close to you” | |||
“Support in coping” | |||
“Learning to feel in control of your situation” | |||
“Fear of physical suffering” | |||
Social | 9 | family and friends’ support | |
volunteers | 18.7% [65] | ||
Communication | 5 | Communication | |
Financial | 8 | Financial | |
Spiritual | 5 | Meaning of death | |
Religious | 44% [43] | ||
“being able to choose the place where you want to die” | |||
Autonomy | 5 | “I can do less than before” | |
“experiencing loss of control over one’s life” | |||
Patients care and support | 3 | “Reassurance by medical staff that the way you feel is normal” | |
“doctor acknowledges and shows sensitivity to your feelings and emotional needs” | |||
Healthcare service and information | 14 | “Being informed about things you can do to help yourself to get well” | |
“Having one member of hospital staff with whom you can talk to” | |||
“Being informed about your test results as soon as feasible” | |||
“benefit and side-effects of treatment” | |||
“Being given written information about the important aspects of your care” | |||
“Being treated like a person not just another case” | |||
“Being informed about cancer which is under control” | |||
Sexuality | 4 | Sexuality | |
Nutrition | 2 | Nutrition | |
Counseling | 1 | 17–24% [31] |