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Table 2 Measurement tools

From: Scopolaminebutyl given prophylactically for death rattle: study protocol of a randomized double-blind placebo-controlled trial in a frail patient population (the SILENCE study)

 

Measurement tool

Death rattle

Scale of Back: 0 = no rattle, 1 = audible close to the patient, 2 = audible standing at the end of the bed, 3 = audible standing in the door opening [4]

Restlessness

Vancouver Interaction and Calmness Scale (VICS score):

5 questions about restlessness scored on a 6-point Likert scale [20]

Dry mouth/urinary retention

Reported observations in CPD (agreed standards, implemented for this study)

Grief

Inventory of Traumatic Grief: 30 questions about grief [21]

Quality of life

Numeric rating scale (0 = worst quality – 10 = best quality) [22]

Quality of dying

Numeric rating scale: 0 = worst quality – 10 = best quality); 15 qualitative descriptions (peaceful, quiet, shocking, painful, etc.) [22] to tick.