Skip to main content

Table 1 Quali-Palli questionnaire tested by the patients

From: Development and validation of a French questionnaire concerning patients’ perspectives of the quality of palliative care: the QUALI-PALLI-Patient

Information about my health and care

 I have received very clear information concerning:

 Q1

-the evolution of my state of health

 Q2

-the objective of the treatments (medication, methods)

 Q3

-possible adverse effects of treatments

Relations with the doctors and caregivers

 Q4

I get information easily from everyone on the staff

 Q5

The doctors answer all my questions

 Q6

I am involved in my own care and decisions concerning me

 Q7

I can refuse certain treatments

 Q8

The doctors listen to me and consider what I say

 Q9

I know the doctor(s) who deal with me

 Q10

I see a caregiver as often as I wish

 Q11

I see a caregiver as often as I want or need

 Q12

The caregivers respond quickly when I call

 Q13

They do the maximum when I am anxious, worried, or sad

Attitude of the caregivers

 Q14

They respect my intimacy

 Q15

They do everything possible to help me with my daily activities

 Q16

I was disturbed by the comments made by the doctors during the visit

 Q17

The caregivers are available to listen to me

 Q18

The caregivers show genuine availability and attentiveness

 Q19

The caregivers sometimes talk to each other as if I was not there

Physical wellbeing

 Q20

I am regularly asked about my pain

 Q21

My pain is quickly taken care of when I report it

 Q22

If necessary, my pain is taken into account before any nursing care

 Q23

The caregivers are gentle when providing care

 Q24

I receive appropriate help when I eat

 Q25

I receive appropriate help to wash myself

 Q26

A bedpan or help to go to the toilet is offered in a respectful way

 Q27

The room and the unit are calm and restful

 Q28

I can rest as much as I wish

 Q29

The caregivers respect my need for rest

Functioning of the unit

 Q30

The nurses do everything they can to make themselves available

 Q31

The doctors do everything they can to make themselves available

 Q32

I have the impression that the unit is well-run

 Q33

The atmosphere in the unit is good

 Q34

I can take advantage of the presence of volunteers

 Q35

I was able to refuse the presence of volunteers

 Q36

I can see a psychologist when I need to

 Q37

I can see a social worker when I need to

 Q38

I can talk to someone about philosophical or religious issues if I wish

Information/reception of relatives

 Q39

The doctors ask me for my permission before informing my relatives about my health

 Q40

My relatives get clear and understandable information about my health

 Q41

My relatives are always received well

 Q42

The visiting rules suit me

Global satisfaction

 Q43

Overall, what is your level of satisfaction with your care