Development and validation of a French questionnaire concerning patients’ perspectives of the quality of palliative care: the QUALI-PALLI-Patient

Guirimand, Frédéric; Martel-Samb, Patricia; Guy-Coichard, Christian; Picard, Stéphane; Devalois, Bernard; Copel, Laure; Abel, Anne; Ghadi, Véronique

doi:10.1186/s12904-019-0403-z

Table 3 Principal component factor analysis (varimax rotation) computed using the final 35-item version of the questionnaire

From: Development and validation of a French questionnaire concerning patients’ perspectives of the quality of palliative care: the QUALI-PALLI-Patient

		Factor1	Factor2	Factor3	Factor4	Factor5	Factor6	Factor7	Factor8
Q11	I see a caregiver as often as I want or need	0.38	0.08	0.25	0.30	0.31	0.07	−0.21	− 0.11
Q12	The caregivers respond quickly when I call	0.38	0.30	0.08	0.29	0.23	0.10	−0.24	− 0.31
Q13	They do the maximum when I am anxious, worried, or sad	0.48	0.11	0.13	0.26	*0.35*	0.12	0.24	−0.12
Q15	They do everything possible to help me with my daily activities	0.58	*0.36*	0.10	0.25	0.09	0.05	0.25	−0.15
Q17	The caregivers are available to listen to me	0.61	0.13	0.10	0.29	0.03	−0.03	− 0.22	0.04
Q18	The caregivers show genuine availability and attentiveness each time they enter the room	0.65	0.32	0.12	0.33	−0.06	− 0.02	− 0.01	0.07
Q25	I receive appropriate help to wash myself	0.56	0.22	−0.07	−0.16	− 0.05	0.23	0.09	−0.09
Q30	The nurses do everything they can to make themselves available	0.66	−0.07	0.11	0.15	0.13	−0.05	− 0.04	− 0.01
Q32	I have the impression that the unit is well-run	0.54	*0.37*	0.01	0.09	0.17	−0.07	− 0.07	0.21
Q23	The caregivers are gentle when providing care	0.25	0.61	0.16	0.20	0.00	0.10	0.14	−0.13
Q27	The room and the unit are calm and restful	0.15	0.71	−0.01	0.14	−0.02	−0.21	− 0.11	0.20
Q28	I can rest as much as I wish	0.12	0.78	0.06	0.06	0.12	0.08	−0.05	0.02
Q29	The caregivers respect my need for rest, for example the time they wake me in the morning	0.18	0.59	−0.12	0.04	0.18	−0.08	−0.25	− 0.08
	I have received very clear information concerning:
Q1	- the evolution of my state of health	0.01	0.07	0.68	0.07	*0.35*	−0.03	−0.04	−0.04
Q2	- the objective of the treatments (medication, methods)	0.06	0.05	0.68	0.23	−0.03	−0.04	0.07	0.03
Q3	- possible adverse effects of treatments	0.15	−0.08	0.62	0.06	−0.14	−0.16	0.08	0.01
Q6	I am involved in my own care and decisions concerning me	0.01	0.07	0.58	0.08	0.08	0.13	−0.10	0.13
Q20	I am regularly asked about my pain	0.12	0.07	0.19	0.61	0.12	0.00	0.20	0.12
Q21	My pain is quickly taken care of when I report it	0.20	0.15	0.03	0.67	0.02	0.04	−0.12	0.07
Q22	If necessary, my pain is taken into account before any nursing care	0.16	0.11	0.13	0.63	0.03	0.04	0.01	−0.03
Q4	I get information easily from everyone on the staff	*0.39*	0.12	*0.38*	−0.17	0.41	0.04	−0.19	−0.07
Q5	The doctors answer all my questions	0.31	0.10	*0.39*	−0.17	0.47	−0.05	0.03	0.01
Q31	The doctors do everything they can to make themselves available to me	*0.44*	0.16	0.13	0.13	0.57	−0.05	−0.06	0.18
Q39	The doctors ask me for my permission before informing my relatives about my health	0.08	−0.06	0.00	*0.36*	0.35	*−0.35*	0.06	0.08
Q40	My relatives get clear and understandable information about my health	0.00	0.09	0.04	0.26	0.60	−0.07	0.10	0.08
Q16	I was disturbed by the comments made by the doctors during the visit	−0.05	*0.42*	0.17	−0.11	0.30	0.48	0.16	−0.03
Q36	I can see a psychologist when I need to	0.12	−0.01	0.03	0.13	−0.08	0.66	−0.01	−0.25
Q37	I can see a social worker when I need to	0.01	−0.20	−0.08	0.08	−0.06	0.56	−0.12	0.24
Q38	I can talk to someone about philosophical or religious issues if I wish	−0.02	0.12	−0.25	− 0.19	*0.43*	0.43	−0.03	0.11
Q7	I can refuse certain treatments	0.01	−0.07	0.06	0.05	0.08	−0.04	0.65	−0.10
Q35	I can refuse the presence of volunteers	− 0.07	− 0.05	− 0.06	−0.02	− 0.03	−0.04	0.69	0.21
Q8	The doctors listen to me and consider what I say	0.33	0.04	*0.37*	−0.25	− 0.01	0.02	0.01	0.44
Q9	Some care or treatment is performed without my consent	0.21	0.02	−0.06	− 0.10	− 0.15	0.14	− 0.05	−0.51
Q10	I know the doctor(s) who take(s) care of me in the service	0.04	−0.06	*0.36*	0.11	0.17	0.06	0.16	0.39
Q19	The caregivers sometimes talk to each other as if I was not there	0.33	0.32	−0.04	0.16	− 0.12	0.25	− 0.05	0.49

Factor 1: 9 items concerning the availability of caregivers to meet the needs of the patient
Factor 2: 4 items concerning attention to patient serenity: gentleness, rest, environment, and respect for their rhythms
Factor 3: 4 items concerning the quality of information given to the patient (health, care, treatment) and the patient’s involvement in decisions
Factor 4: 3 items related to pain management
Factor 5: 5 items concerning the willingness of caregivers, particularly doctors, to listen
Factor 6: 4 items concerning the psychological, social, and spiritual needs of the patient and, above all, their need to be respected
Factor 7: 2 items concerning the possibility of refusing certain care or refusing the presence of volunteers
Factor 8: 4 items concerning the respect of the patient as an actor in their own care
The criteria to attribute an item to one factor resulted from a substantial loading (> 0.35 in boldface) on one principal component. When an item loaded across several factors, it was attributed to the factor for which it maximized the internal consistency; the others loadings are italic

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ISSN: 1472-684X

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