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Table 2 Item level statistical results: mean, kurtosis, minimum / maximum

From: Factor structure of the Quality of Children’s Palliative Care Instrument (QCPCI) when completed by parents of children with cancer

Item N Mean/Variance Skewness/Kurtosis Min/Max % with Min/Max
1. How often do health professionals communicate well with you and your family? 532 3.252 −1.088 0 0.56%
  0.609 1.524 4 41.92%
2. How often do you feel a close connection to the health professionals who care for your child? 532 3.07 −0.896 0 1.32%
  0.775 0.795 4 35.15%
3. How much do you trust the health professionals caring for your child? 530 3.506 −1.162 0 0.19%
  0.39 1.842 4 56.60%
4. How often do you experience “acts of kindness” from health professionals? 531 3.169 −0.846 0 0.56%
  0.638 0.75 4 37.85%
5. How often do health professionals ask for your opinions or concerns about your child? 530 3.083 −0.661 0 0.19%
  0.774 −0.292 4 37.74%
6. How often do you feel trusted as the “expert” on your child? 528 3.146 −0.976 0 0.95%
  0.757 0.825 4 39.58%
7. How often do health professionals respect your wishes for your child’s care? 531 3.352 −1.14 0 0.38%
  0.548 1.576 4 48.40%
8. How often do health professionals help you to feel that you are a “good parent”? 526 3.226 −1.202 0 1.33%
  0.875 1.017 4 48.86%
9. How often are you as involved in your child’s care as you want to be? 529 3.586 −1.483 1 0.76%
  0.435 1.5 4 67.49%
10. How often is the information you receive about your child the same from one health professional to the next? 527 3.083 −0.581 0 0.19%
  0.521 0.564 4 27.89%
11. From your perspective, how often is information appropriately shared among health professionals? 530 3.055 −0.633 0 0.38%
  0.637 0.288 4 30.57%
12. How often does it seem health professionals plan together so they are all working towards the same goals for your child’s care? 526 3.281 −0.985 0 0.38%
  0.582 1.049 4 44.11%
13. How often do health professionals provide the right amount of overall support to your other children? 326 1.85 0.118 0 21.47%
  1.827 −1.156 4 15.03%
14. How often do health professionals guide you on how you can support your other children? 330 1.691 0.237 0 22.12%
  1.607 −0.978 4  
15. How often do health professionals allow and encourage your other children to visit if your child is in the hospital? 314 2.331 −0.266 0 16.24%
  2.171 −1.326 4 33.12%