Table 2 Item level statistical results: mean, kurtosis, minimum / maximum

1. How often do health professionals communicate well with you and your family?

2. How often do you feel a close connection to the health professionals who care for your child?

3. How much do you trust the health professionals caring for your child?

4. How often do you experience “acts of kindness” from health professionals?

5. How often do health professionals ask for your opinions or concerns about your child?

6. How often do you feel trusted as the “expert” on your child?

7. How often do health professionals respect your wishes for your child’s care?

8. How often do health professionals help you to feel that you are a “good parent”?

9. How often are you as involved in your child’s care as you want to be?

10. How often is the information you receive about your child the same from one health professional to the next?

11. From your perspective, how often is information appropriately shared among health professionals?

12. How often does it seem health professionals plan together so they are all working towards the same goals for your child’s care?

13. How often do health professionals provide the right amount of overall support to your other children?

14. How often do health professionals guide you on how you can support your other children?

330

15. How often do health professionals allow and encourage your other children to visit if your child is in the hospital?